Press Releases




For the Media

Online Presskit 

Below you will find PDF downloads about the organization and the disease. You also can find information about placing ads in our member-publication, "Scleroderma Voice."

Other Media Requests

If you are a member of the media, the Communications Department at the National Office can help you with the following:

  • Provide you with more information about scleroderma and related diseases
  • Logos and other image requests
  • Arrange interviews with patients, family members, and support group, chapter and executive leadership

For more information, contact us at (800) 722-4673 or email

2013 Annual Report

2015 Audited Financials

IRS Form 990