Share Your Story

Become  a Scleroderma Foundation Champion

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No matter what your connection is to scleroderma, you have a story to tell. That’s why we’ve created the Scleroderma Foundation Champions. This group of individuals will inspire others who might be going through a difficult time and build awareness about scleroderma across the country.

It’s easy to become a Scleroderma Foundation Champion! Simply complete the form below to share your story.

  1. Provide us with your personal information (name, age, email, phone contact, etc.)
  2. Continue to Step 2 to share your story. (Note: You will need to log-in to the website to complete this step.)
  3. If you have any difficulty submitting your story, please email it to

Please note: It may take 2-3 business days for your story to appear online. If you have any difficulty submitting your story or do not see it after several business days, please email it to

Here are some of the ways we could use your story:

  •  A profile in the “Scleroderma Voice” magazine or a direct mail piece.
  •  On Capitol Hill for our Advocacy Program.
  • Share it on our social media channels like Facebook, Twitter or YouTube.
  • To help promote a chapter or support group special event, like our “Stepping Out to Cure Scleroderma” walk and runs.
  • And, many more!

We will contact you if we’d like to use your story in the future.

Step One - About You

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Need Help?

If you have any difficulty submitting your story, please contact the Scleroderma Foundation at (800) 722-4673. You also can email Please remember to send a photo along with your story.