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Capitol Hill Day

April 16-18, 2018
Washington, D.C.

2018 Capitol Hill Day Application  Click the link to the left. Download the file. Save to your computer, and then complete the application using the fillable fields. Save the completed document.  

  • Scholarship request is included in the application.
  • Non-scholarship applicants must complete an application (excluding the scholarship sections).
  • For applicants requiring a caregvier in order to participate, both persons must complete individual applications.
  • Download the form to your computer before completing the application (rather than completing the application online).
  • You may need to download a free version of Adobe Reader.
  • Please save the application in PDF format and include your name as part of the file name.
  • Questions?  After reading the entire application, please contact David Murad at dmurad@scleroderma.org or by calling (800) 722-4673 x252.

Scholarship applications from those in the states listed below receive high priority because key members of Congress from these states serve on committees (including the Energy and Commerce and Appropriations Committees) that are relevant to our advocacy efforts.  While advocates from all states are encouraged to apply, it is essential to our efforts to have advocates who are registered voters of these states/districts to ask their Congressional leaders to support the bill and to be champions of H.R. 4638 in their committees (click link to follow the bill’s progress).  If you are not from one of these states, do not let that keep you from applying.

If you are unsure of your district, click Find Your Representative and enter your residential ZIP Code. Scroll down to find your representative.
The district number is listed under the representative’s name.  D = Democrat; R = Republican and I = Independent. 

STATE

DISTRICT(S)

STATE

DISTRICT(S)

California

6, 9, 18, 36, 45, 52

Florida

12, 14

Indiana

5, 8

Kentucky

2

Louisiana

1

North Carolina

1, 8

Oklahoma

2

Oregon

2, 5

Tennessee

7

Vermont

1 (statewide)

Washington

5

West Virginia

1


 

 

 

 

 

 

 

 

 

 

 

More information about the current bill is below. To learn more about the foundation's Capitol Hill Day experience (and how to be well-prepared), check out the Grassroots Advocacy Training webinars featured on the Advocate Resources page and the foundation's YouTube channel. Upcoming webinars will focus specifically on what to expect on Capitol Hill and strategies for an impactful meetings with elected officials.

H.R.4638 - National Commission on Scleroderma and Fibrotic Diseases Act of 2017

Rep. Peter King (R-NY2) and Rep. Elliot Engel (D-NY16) are co-leaders of the House bill that was introduced on December 13, 2017. If passed, the bill will establish (at no additional cost to the federal government) a National Commission on Fibrotic Diseases with the National Institutes of Health (NIH). This commission would focus on the following:

  • Evaluate and make recommendations regarding improvements to the coordination and advancement of NIH-supported research activities related to fibrosis and fibrotic diseases;
  • Study the incidence, duration and mortality rates of fibrotic diseases;
  • Evaluate facilties and resources for the diagnosis, prevision and treatment of fibrotic diseases; and
  • Develop an long-range plan for the use and organization of national resources to effectively advance research on fibrotic diseases.

Rep. Engel is a member of the Energy and Commerce Committee--the oldest standing legislative committee which is vested with the broadest jurisdiction of any congressional authorizing committee. Moreover, the committee has responsibility for matters that include consumer protection, food and drug safety, public health and research. The previous bill that was introduced in the 114th Congress (H.R. 3666) had 51 cosponsors from 19 states and the District of Columbia.  Current advocacy efforts include re-engaging those members of the House and Senate asking for their co-sponsorship of H.R. 4638.

The Scleroderma Foundation appreciates all patient advocates across the country who have participated in all aspects of patient advocacy--signing advocacy letters, raising awareness throughout local communities, meeting with elected officlals in their home offices as well as sharing stories and experiences on Capitol Hill. Thank you!

2016 Capitol Hill Day

Please sign up to receive the weekly eLetter.  If you have questions, please contact:

David Murad
Director of Chapter Relations
Scleroderma Foundation 
(800) 722-4673 ext. 252
dmurad@scleroderma.org