Advocates on Steps of Congress 2013
Please leave this field empty

< Back to Advocacy Home Page

Capitol Hill Day

April 16-18, 2018
Washington, D.C.

Co-Sponsor HR 4638We need you to ask your Representative to co-sponsor H.R. 4638 "National Commission on Scleroderma and Fibrotic Diseases Act of 2017."  Download a sample letter, fill in the blanks, and send it as an email attachment to David Murad,  The Foundation will deliver it to your Representative. 

The deadline (Feb. 28) to submit an application to attend Capitol Hill Day has expired.  Scholarship applications from those in the states listed below receive priority because key members of Congress from these states serve on committees (including the Energy and Commerce and Appropriations Committees) that are relevant to our advocacy efforts.  While advocates from all states are encouraged to apply, it is essential to our efforts to have advocates who are registered voters of these states/districts to ask their Congressional leaders to support the bill and to be champions of H.R. 4638 in their committees (click link to follow the bill’s progress).  If you are not from one of these states, do not let that keep you from applying.  If you have questions regarding the application process or decisions regarding scholarships, please contact David Murad,, (800) 722-4673 x252.

If you are unsure of your district, click Find Your Representative and enter your residential ZIP Code. Scroll down to find your representative.
The district number is listed under the representative’s name.  D = Democrat; R = Republican and I = Independent. 






6, 9, 18, 36, 45, 52


12, 14


5, 8





North Carolina

1, 8




2, 5




1 (statewide)



West Virginia













More information about the current bill is below. To learn more about the foundation's Capitol Hill Day experience (and how to be well-prepared), check out the Grassroots Advocacy Training webinars featured on the Advocate Resources page and the foundation's YouTube channel. Upcoming webinars will focus specifically on what to expect on Capitol Hill and strategies for an impactful meetings with elected officials.

H.R.4638 - National Commission on Scleroderma and Fibrotic Diseases Act of 2017

Rep. Peter King (R-NY2) and Rep. Elliot Engel (D-NY16) are co-leaders of the House bill that was introduced on December 13, 2017. If passed, the bill will establish (at no additional cost to the federal government) a National Commission on Fibrotic Diseases with the National Institutes of Health (NIH). This commission would focus on the following:

  • Evaluate and make recommendations regarding improvements to the coordination and advancement of NIH-supported research activities related to fibrosis and fibrotic diseases;
  • Study the incidence, duration and mortality rates of fibrotic diseases;
  • Evaluate facilties and resources for the diagnosis, prevision and treatment of fibrotic diseases; and
  • Develop an long-range plan for the use and organization of national resources to effectively advance research on fibrotic diseases.

Rep. Engel is a member of the Energy and Commerce Committee--the oldest standing legislative committee which is vested with the broadest jurisdiction of any congressional authorizing committee. Moreover, the committee has responsibility for matters that include consumer protection, food and drug safety, public health and research. The previous bill that was introduced in the 114th Congress (H.R. 3666) had 51 cosponsors from 19 states and the District of Columbia.  Current advocacy efforts include re-engaging those members of the House and Senate asking for their co-sponsorship of H.R. 4638.

The Scleroderma Foundation appreciates all patient advocates across the country who have participated in all aspects of patient advocacy--signing advocacy letters, raising awareness throughout local communities, meeting with elected officlals in their home offices as well as sharing stories and experiences on Capitol Hill. Thank you!

2016 Capitol Hill Day

Please sign up to receive the weekly eLetter.  If you have questions, please contact:

David Murad
Director of Chapter Relations
Scleroderma Foundation 
(800) 722-4673 ext. 252