See You in Chicago 2019`
The 2019 National Patient Education Conference will be July 19-21 in Chicago! Will you join us?

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

Click here to get started >>

Learn about how scleroderma affects the body
Corbus RESOLVE-1 Study Web Ad
Learn about the RESOLVE-1 study and participating centers on

If you have questions,
contact Lindsey Smith

Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


Download Our Free Scleroderma Information Packet

Can’t download It? Have us mail you a copy!

GuideStar Gold StarSee our 2018 GuideStar Gold Star profile

Buzzworthy Reads>>

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Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #805; March 15, 2019

  • Meet the Experts: Taking Charge of Your Lung Health, Saturday, May 18, 2019, 10 a.m. - 2 p.m., Hyatt Regency Hotel, Dallas, Texas
  • Beat the March 20 Deadline to Apply for a Conference Scholarship!
  • Stepping Out to Cure Scleroderma 2019
  • Achieving Financial Independence with Ticket to Work and an ABLE Account, Webinar: Wednesday, March 27, 3 - 4:30 p.m. E.T.
  • Register Today for the National Patient Education Conference, July 19-20-21, Chicago, Illinois
  • Eating Well with Scleroderma
  • End of Life Care
  • Scleroderma Genomics and Health Disparities Unit
  • Reach for the Cure
  • Call for Nominations
  • Seeking Patient Advocates
  • Clincal Trial Update/Opportunity
    • Localized Scleroderma Clinical Research Trial



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