See You in Chicago 2019`
The 2019 National Patient Education Conference will be July 19-21 in Chicago! Will you join us?

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


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Progress Report FY 2017 cover
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our FY 2017 Progress Report



Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #774; August 10, 2018
  • Doctor of the Year: Lesley Ann Saketkoo, M.D., M.P.H.
  • Research & Treatment Centers: Northwestern Scleroderma Program, Northwestern Medicine, Chicago, Ill.
  • Kids Get Scleroderma Too, October 26 & 27; Aurora, Colorado
  • WEBINAR: One on One with Dr. Maureen Mayes, “Addressing the Scleroderma Myths.” August 15, 2018; 7 - 9 p.m. ET
  • "Chronic Pain Management," on 
  • Stepping Out Walks in August and September: Illinois (9/8 & 22), Indiana (8/25), Massachusetts (9/9, 16, 30), Missouri (9/8), Ohio (8/25), Washington (9/15), and Wisconsin (8/19)
  • Now Accepting Scleroderma Research Grant Applications, DEADLINE:  September 17, 2018.


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