See You in Chicago 2019`
The 2019 National Patient Education Conference will be July 19-21 in Chicago! Will you join us?

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


Download Our Free Scleroderma Information Packet

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Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #792; December 14, 2018
  • Video:  "Voices of Patient Advocates"
  • December 15 Deadline for 2019 Health Insurance Open Enrollment 
  • NORD Webinar: "How to Make Your Insurance Work for You." Thurs., Dec. 20, 2 p.m. ET
  • Research & Treatment Centers: UCSF Scleroderma Center, University of California, San Francisco
  • Patients as Partners, systemic scleroderma survey; December 14 Deadline
  • "Questions Pre-Diagnosis" 
  • Dreaming Big
  • Winter Voice Published Online Only
    • The RESOLVE-1 Study: Trial to Evaluate Efficacy and Safety of Lenabasum in Diffuse Cutaneous Systemic Sclerosis


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