See You in Chicago 2019`
The 2019 National Patient Education Conference will be July 19-21 in Chicago! Will you join us?

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

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Download Our Free Scleroderma Information Packet

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News

Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #801; February 15, 2019

  • Registration Opens for 2019 National Patient Education Conference, July 19-20-21, Chicago, Illinois
  • Conference Scholarship Applications, 2019 National Patient Education Conference, Chicago, Illinois
  • Sjögren Syndrome, updated brochure (January 2019)
  • Stress Management Group, Webinar Series, Thursdays in February; 7-8 p.m. MT
  • Call for Nominations
  • Virtual Support Group: Parents of Children with Scleroderma, February 6, 7:30 p.m. ET
  • Bridging Health and Social Care, Rare Disease Day 2019, Thursday, February 28
  • Research & Treatment Centers: Virginia Mason Medical Center
  • "Pulmonary Rehabilitation" livebetter.com
  • Winter Voice Published Online Only

 

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