2018 National Conference Registration Open!
The 2018 National Patient Education Conference will be held July 27-29 in Philadelphia! Will you join us?

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


Download Our Free Scleroderma Information Packet

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Click the image above to access a copy of our FY 2015-16 Annual Report



Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

February 16, 2018; eLetter #750
  • Presidents Day Holiday Observation
  • 2018 Capitol Hill Day ApplicationApril 16-18, 2018
  • Grassroots Adovcacy Webinar, "Using Your Voice to Meet with an Elected Official", Feb. 26, 2 p.m. Eastern
  • 2018 National Patient Education Conference, July 27-29; Philadelphia: REGISTER ONLINE
  • Scholarship Application to Attend 2018 National Patient Education Conference
  • Support Groups: Ohio Chapter
  • Scleroderma & How it Affects Our Children: Webinar, March 13, 7-9 p.m. Eastern
  • Rare Disease Day Tweetchat: Wednesday, Feburary 28, 1-2 p.m. Eastern
  • Yoga for Every Body: ONLINE VIDEO
  • Stepping Out 2018
  • Clinical Trial Updates:  
    • CATALYST Trial 

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                                                               annual report cover

Click on image above to access our FY 2015-16 Annual Report!

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