2018 National Conference Registration Open!
The 2018 National Patient Education Conference will be held July 27-29 in Philadelphia! Will you join us?

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


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Click the image above to access a copy of our FY 2015-16 Annual Report



Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

March 9, 2018; eLetter #753
  • March 21 Deadline to Apply for a Scholarship 
    to 2018 National Patient Education Conference
  • Are You Going to Philly?  2018 National Patient
    Education Conference, 
    July 27-29; Philadelphia
  • Support Groups: New England
  • Scleroderma & How it Affects Our Children:
    March 14, 7-9 p.m. EDT
  • Grassroots Advocacy Webinar, March 26; 2 p.m. EDT
  • Tweet @scleroderma
  • The Healthline & NORD "Stronger Scholarship"
  • Get Personal on Your Page: Stepping Out to Cure Scleroderma
  • Clinical Trial Updates:  
    • IND Application for Scleroderma Drug
      Greenlighted by FDA
    • CATALYST Trial

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                                                               annual report cover

Click on image above to access our FY 2015-16 Annual Report!

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