2018 National Conference Save the Date
The 2018 National Patient Education Conference will be held July 27-29 in Philadelphia! Will you join us?

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

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Download Our Free Scleroderma Information Packet

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annual report cover
Click the image above to access a copy of our FY 2015-16 Annual Report

 

News

Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

December 22, 2017; eLetter #742
  • Holiday Hours: Christmas Day
  • Sandra Mintz, M.S.N., R.N., Appointed Incoming President of ARHP
  • Eating Well: Tips for Pediatric Systemic Sclerosis
  • Using Your Voice to Advance Research and Improve Care:
    Tips for Effective Advocacy and Congressional Outreach
  • Webinar: The 20 Percent Scleroderma Man FOR MEN ONLY
  • Find Out What's New on the Redesigned NIAMS Website
  • Self-Management Education: Learn More Feel Better
  • The Future of Precision Medical Care for Rheumatic Disease
  • PAH in Systemic Sclerosis - Learn More in a Special Article from Scleroderma Voice
  • 2018 National Patient Education Conference
  • Let’s Advance Scleroderma Research in 2018!
 Clinical Trial Updates:
º Research Participation Opportunity, Cumberland Pharmaceuticals 
December 29, 2017; eLetter #743
  • Holiday Hours: New Year's Day
  • Finding Calm in the Storm- Video
  • Using Your Voice to Advance Research and Improve Care:
    Tips for Effective Advocacy and Congressional Outreach
  • Webinar: The 20 Percent Scleroderma Man FOR MEN ONLY
  • Wildflowers Abundant in the Garden of Systemic Sclerosis Research,
    While Hopeful Exotics Will One Day Bloom
  • PAH in Systemic Sclerosis Learn More in a Special Article from Scleroderma Voice
  • 2018 National Patient Education Conference
  • Three Days Left to Make a Difference!
 Clinical Trial Updates:
º Research Participation Opportunity, Cumberland Pharmaceuticals

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                                                               annual report cover

Click on image above to access our FY 2015-16 Annual Report!

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