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Colorado Support Groups

Support Groups provide a forum to share feelings, concerns, information, and as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings.

Support groups often feature speakers specializing in scleroderma or related topics. To find out information about upcoming speakers or meeting topics, please contact the support group leader or chapter office.

This schedule is subject to change. Before attending a group for the first time, please call to verify date and time. Groups are free of charge and open to everyone.

Please let us know if there are topics or speakers of interest to you for presentations at support group meetings and we will work on getting those scheduled.


"Virtual" Support Group

Teleconference Support Group
7 p.m. - 8 p.m., Thursday evenings.
Call 712-775-7031, enter call ID 781-611-035# when prompted.

Contact:  Cyndy Besselievre
Phone:  303-806-6686
Email:  cochapter@scleroderma.org 

Meeting Schedule

May 4, 2017 - Shelley Van Pelt, RN, MSN, CNS will discuss "Sugar. It's Not as Sweet as You Think" - the damage sugar does when you have an autoimmune disease.
August 10, 2017 - Linda McNamara and Karen Kemper, authors of “If You Have to Wear an Ugly Dress, Learn to Accessorize: Guidance, Inspiration, and Hope for Women with Lupus, Scleroderma and Other Autoimmune Illnesses” will share their experiences living with serious autoimmune illnesses (lupus and scleroderma). They will discuss the metaphor of “The Ugly” dress which represents chronic illness and how attitudes, beliefs and behaviors can be used as “Accessories” to cope with the challenges of an Ugly Dress. 
November 9, 2017 - To be announced.


Colorado Springs
Southern Colorado Support Group
11 a.m. – 1 p.m., 3rd Saturday of odd months
Penrose Cancer Center, Room CC-A, 2222 N. Nevada Ave., Colorado Springs, CO 80907  

Contact: Cyndy Besselievre
Phone: 303-806-6686
Email: cochapter@scleroderma.org

Meeting Schedule

January 21, 2017 - View and discuss a video from the 2016 National Patient Education Conference - "Fibrosis - The Ugly Side of Collagen" presented by Carol Feghali-Bostwick, Ph.D., Medical University of South Carolina.
March 18, 2017 - Sandee Maas will present on "Essential Oils Basics".  Learn what essential oils are and how they can help with muscle and joint pain, digestive issues, insomnia and more. NOTE: DIFFERENT ROOM LOCATION FOR THIS MEETING IN THE PAVILION BUILDING, 2ND FLOOR, ROOMS B&C.
May 20, 2017 - "Show and Tell" - bring your favorite tool or gadget for making daily life easier with scleroderma to share with the group.
July 15, 2017 - Lauren Languido, Student Therapist & Doctoral Student, Psychology Clinic - University of Colorado-Denver, will present on chronic illness and relationships.
September 16, 2017 - Update from workshops presented at the 2017 National Patient Education Conference.
November 18, 2017 - Holiday party.  NOTE:  LOCATION TO BE DETERMINED.


Denver
Mile High Support Group
11 a.m. – 1 p.m., 2nd Saturday of the month.
Arthritis Foundation, 2280 S. Albion St., Denver, CO 80222

Contact: Sandee Maas
Phone: 720-272-7786
Email: sandeejo@gmail.com  

Meeting Schedule

January 14, 2017 - Open discussion.
February 11, 2017 - Update from Ken Urban who recently underwent a stem cell transplant and Happy Valentine's Day - bring a sweet treat or snack if you like.
March 11, 2017 - Dr. Erika Enos, N.D. will discuss naturopathy in general and how it relates to scleroderma.
April 8, 2017 - Janet Poole, Ph.D., OTR/L, FAOTA, Occupational Therapist at the University of New Mexico School of Medicine will present on managing fatigue and daily living with scleroderma.
May 13, 2017 - Mallary Crow Adams, Clinical Research Coordinator at UCHealth, will explain the research process and discuss current studies related to scleroderma
June 10, 2017 - Picnic & Ice Cream Social in the Park at Mamie D. Eisenhower Park, Picnic Area #4, 4300 E. Dartmouth Ave., Denver, CO  80222. Families are welcome; games for the kids! Click here for more details and here for park and picnic area map.   NOTE:  DIFFERENT LOCATION FOR THIS MEETING. Following the picnic, we invite you to join us back at the Scleroderma Foundation (at 2280 S. Albion St., Denver, CO 80222) to help us with stuffing our goody bags for the June 17 Stepping Out Walk.
July 8, 2017 - Vicki Emch, MS, RD, CNSC, a Clinical Director at Epic Medical Solutions, will discuss anti-inflammatory diets.
August 12, 2017 - Update from workshops presented at the 2017 National Patient Education Conference.
September 9, 2017 - Tyna O'Connor, BSN, RN, Interstitial Lung Disease Program RN, Advanced Lung Disease Clinic at UCHealth will discuss nagivating the medical system.
October 14, 2017 - Open discussion.  
November 11, 2017 - To be announced.
December 9, 2017 - Holiday party! 


Loveland
Northern Colorado Support Group
10 a.m. – 12 p.m., 4th Saturday of even months
Medical Center of the Rockies, 2500 Rocky Mountain Ave., Loveland, CO 80538. NOTE: ROOM LOCATION VARIES - SEE BELOW.  

Contact: Judy Laible
Phone: 970-622-9498
Email: jlaible@frii.com

Barb Kinneer
Phone:  970-817-4386
Email: kinneer.barbara@gmail.com 

Meeting Schedule

February 25, 2017 - Julie Knighton, RN, MSN, Community Health Education Coordinator at UCHealth, will discuss programs available through UCHealth such as the Stanford model Living Well with Chronic Conditions, Living Well with Pain and more.  ROOM LOCATION:  BIG THOMPSON CANYON ROOM, 1ST FLOOR.
April 15, 2017 - Paul Menard-Katcher, M.D., Assistant Professor of Medicine, Division of Gastroenterology and Hepatology at University of Colorado School of Medicine, will present on gastroenterology problems in scleroderma. ROOM LOCATION:  MOUNT AUDUBON/HORSETOOTH MOUNTAIN/HAGUES PEAK/NAVAJO PEAK ROOMS, LOWER LEVEL.  NOTE:  THIS MEETING WILL BE HELD ON THE 3RD SATURDAY OF APRIL.
June 24, 2017 - Kat Laws, an Advance Care Planning Support Specialist and Guide, will clarify the use of medical documents such as the Advanced Directive for Medical/Surgical Treatment (Living Will) and Durable Power of Attorney for Health Care.  ROOM LOCATION:  ARAPAHOE PEAKS AND MOUNT MEEKER ROOMS, LOWER LEVEL.
August 26, 2017 - Update from workshops presented at the 2017 National Patient Education Conference. ROOM LOCATION:  ARAPAHOE PEAKS AND MOUNT MEEKER ROOMS, LOWER LEVEL.
October 28, 2017 - Hillary Beck-Gifford, Fitness Specialist & Yoga Teacher, will demonstrate gentle yoga including chair yoga in order to gain flexibility, strength and practice breathing techniques.  ROOM LOCATION:  ARAPAHOE PEAKS AND MOUNT MEEKER ROOMS, LOWER LEVEL.
December, 2017 - Holiday Luncheon and Party at 11:00 a.m. at The Moot House, Garden Room, 2626 S. College Ave., Fort Collins, CO  80525! NOTE: DIFFERENT TIME AND LOCATION FOR THIS EVENT!


Grand Junction
Western Slope Support Group
11 a.m. – 1 p.m., 2nd Saturday of odd months.
Community Hospital, Legacy Room 1, 2351 G Road, Grand Junction, CO 81505 

Contact: Garnet Hoover
Phone: 970-234-1142
Email: unite24u@msn.com

Contact: Suzanne Hope
Phone: 970-326-7723
Email: reikihopes@yahoo.com  

Meeting Schedule

January 14, 2017 - Kevin Fischer, BS, RCT, FAARC will present on "Scleroderma - How it Affects the Heart and Lungs, and Possible Treatments".
March 11, 2017 - NOTE:  THIS MEETING HAS BEEN CANCELLED.
May 13, 2017 - Jeanette Durham, MS, RD, CDE, Community Hospital, will discuss nutrition and scleroderma.
July 8, 2017 - Questions & Answers video conference with Dr. Aryeh Fischer, Rheumatologist, Director-Systemic Scleroderma Program, University of Colorado School of Medicine.
September 9, 2017 - Update from workshops presented at the 2017 National Patient Education Conference. 
November 11, 2017 - Dana Armstrong, Massage Therapy Program Instructor at CO Northwestern Community College, will present on massage and pain management. Dana's students will be on hand to give free chair massages to those at the meeting.


Rio Rancho
Albuquerque/Rio Rancho Support Group
1 p.m. - 3 p.m., 2nd Saturday of even months.
Flying Star Cafe (hospitality room), 10700 Corrales Road A, Albuquerque, NM  87114

Contact:  Anna Wenger
Phone:  505-974-9293
Email:  annawenger91@gmail.com

Theresa Johnson
Phone:  520-248-2235

Meeting Schedule

January 14, 2017 - View and discuss a video from the 2016 National Patient Education Conference.
February 11, 2017 - Janet Poole, Ph.D., OTR/L, FAOTA, Occupational Therapist at the University of New Mexico School of Medicine will present on managing fatigue and daily living with scleroderma. 
March 11, 2017 - View a video "Eating Well with Scleroderma" followed by discussion on anti-inflammatory diets and how good nutrition can help with fatigue.
April 8, 2017 - Open discussion about living with scleroderma.
May 13, 2017 - To be announced.
June 10, 2017 - To be announced.
July 8, 2017 - Open discussion from 11:00 a.m. to 1:00 p.m. at the Flying Star Cafe (conference room), 10700 Corrales Rd. NW, Albuquerque, NM 87114. (Food is not included but you may order it yourself.)  NOTE: DIFFERENT TIME AND LOCATION FOR THIS MEETING.
August 12, 2017 - To be announced.
October 14, 2017 - To be announced.
December 9, 2017 - Holiday party!