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Colorado Support Groups

Support Groups provide a forum to share feelings, concerns, information, and as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings.

Support groups often feature speakers specializing in scleroderma or related topics. To find out information about upcoming speakers or meeting topics, or to suggest topics or speakers of interest to you, please contact the support group leader in your area below or the chapter office at cochapter@scleroderma.org or 303-806-6686.

This schedule is subject to change. Before attending a group for the first time, please call to verify date and time. Groups are free of charge and open to everyone.

 


"Virtual" Support Group

Teleconference Support Group
7 p.m. - 8 p.m., Thursday evenings.

Contact:  Cyndy Besselievre
Phone:  303-806-6686
Email:  cochapter@scleroderma.org 

Meeting Schedule

February 8, 2018 - Michelle MacDonald, RD, MS, Clinical Dietitian at National Jewish Health, will host a webinar on Eating for Energy.  To join the webinar at the designated time: 1) by computer: go to https://join.me/coscleroderma, enter your name and request to join or 2) by phone: (or if your computer has no audio) call 302-202-5900, enter Conference ID 947-770-935.  
May 10, 2018 - Open discussion to address your issues and questions related to scleroderma. To join the teleconference, call 712-775-7031, enter call ID 781-611-035# when prompted.
August 9, 2018 - To be announced.
November 8, 2018 - To be announced.


Colorado Springs
Southern Colorado Support Group
11 a.m. – 1 p.m., 3rd Saturday of odd months
Penrose Cancer Center, Room CC-C, 2222 N. Nevada Ave., Colorado Springs, CO 80907  (NOTE: NEW ROOM LOCATION FOR 2018!)

Contact: Cyndy Besselievre
Phone: 303-806-6686
Email: cochapter@scleroderma.org

Meeting Schedule

January 20, 2018 -  Dr. Na Zhai, Licensed Acupuncturist, Chinese Acupuncture Clinic will present on the basics of acupuncture and how it can be applied to scleroderma and chronic pain.
March 17, 2018 - Amanda Neufeld, Yoga Studio Satya will demostrate gentle yoga, breathing and the mind-body connection. 
May 19, 2018 - MEETING CANCELLED!
July 21, 2018 - John Perrodin, Manager Patient Relations at Penrose-St. Francis Health Services, Centura Health, will present on patient rights and navigating the healthcare system. 
September 15, 2018 - Update on the workshops presented at the 2018 National Patient Education Conference.
November 17, 2018 - Holiday luncheon and party! 


Denver
Mile High Support Group
11 a.m. – 1 p.m., 2nd Saturday of the month.
Arthritis Foundation, 2280 S. Albion St., Denver, CO 80222

Contact: Sandee Maas
Phone: 720-272-7786
Email: sandeejo@gmail.com

Ali Davidson
Phone: 303-242-0616
Email: aliwishous3@yahoo.com

Lloyd Jones
Phone: 720-363-5397
Email: lannjones@gmail.com 

Meeting Schedule

January 13, 2018 - Kimberly Ann Ward, LMT, CHHC, Body Mind Therapist, will discuss stress and autoimmune and leaky gut. 
February 10, 2018 - View and discuss a video from the 2017 National Patient Education Conference.  
March 10, 2018 - Rizwan Quader of Actelion Pharmaceuticals US will present on FAQ's about PAH.
April 14, 2018 - Shelley Brake, PA-C, UCHealth Woud Care Clinic will present on Wound Care - Fact versus Fiction.
May 12, 2018 - Mountain States Therapy will present on therapy and exercises for scleroderma hands.
June 9, 2018 - Picnic in the Park at Mamie Doud Eisenhower Park. Click here for all the fun details. (NOTE: DIFFERENT LOCATION FOR THIS EVENT!) Following the picnic, join us back at the office (at our regular meeting place) to help stuff the goody bags for the Stepping Out to Cure Scleroderma Walks.
July 14, 2018 - To be announced. 
August 11, 2018 - Update on the workshops presented at the 2018 National Patient Education Conference. 
September 8, 2018 - To be announced.
October 13, 2018 - To be announced.
November 10, 2018 - To be announced.
December 8, 2018 - Holiday party!


Loveland
Northern Colorado Support Group
10 a.m. – 12 p.m., 4th Saturday of even months
Medical Center of the Rockies, 2500 Rocky Mountain Ave., Arapahoe Peaks and Mount Meeker rooms (lower level) Loveland, CO 80538. 

Contact: Judy Laible
Phone: 970-622-9498
Email: jlaible@frii.com

Barb Kinneer
Phone:  970-817-4386
Email: kinneer.barbara@gmail.com 

Meeting Schedule

February 24, 2018 - Patricia Kuyper, O.T., UCHealth, will present on hand exercises for scleroderma.
April 28, 2018 - A representative from the Kendall Nutrition Center at CSU will present on nutrition and diet for scleroderma. 
June 23, 2018 - Carolyn Boettger, DDS, Tri-City Dental, will present on dental issues and scleroderma. 
August 25, 2018 - Update on the workshops presented at the 2018 National Patient Education Conference.
October 27,2018 - Patti Welfare, MA, Community Health Specialist, Aspen Club, will present on stress and the brain and how things like meditation can help relieve stress and keep the brain functioning better.
December 2018 - Holiday luncheon and party! (Date and location to be determined.)


Grand Junction
Western Slope Support Group
11 a.m. – 1 p.m., 2nd Saturday of odd months.
Community Hospital, Legacy Room 1, 2351 G Road, Grand Junction, CO 81505 

Contact: Garnet Hoover
Phone: 970-234-1142
Email: wolfing57@gmail.com

Contact: Suzanne Hope
Phone: 970-326-7723
Email: reikihopes@yahoo.com  

Meeting Schedule

January 13, 2018 - Jeannette Durham, Diabetes Clinical Manager, Community Health's Outpatient, Nutrition and Diabetes Education Center will give a smoothie demonstration - Sip Your Way to Better Health.
March 10, 2018 - HopeWest Hospice of Grand Junction will present on Caregiver's Support. 
May 12, 2018 - View and discuss a video from the 2017 National Patient Education Conference titled "Evaluation and Management of Scleroderma Lung Disease" by Aryeh Fischer, MD.
July 14, 2018 - A representative from Actelion Pharmaceuticals US will present on "PAH-Tips for Being an Empowered Patient" (tentative). Lunch will be provided.  (NOTE: THIS MEETING WILL BE HELD FROM 1:00 - 3:00 P.M.)
September 8, 2018 - Update on the workshops presented at the 2018 National Patient Education Conference.
November 10, 2018 - Holiday party!