2nd Annual U.S. Conference on Rare Diseases & Orphan Products
Being Held From October 22 - 24, 2012
HORSHAM, PA, USA—October 8, 2012— DIA and the National Organization for Rare Disorders (NORD), in collaboration with FDA, NIH, EURORDIS, and the Duke Department of Pediatrics, will host the 2nd Annual US Conference on Rare Diseases & Orphan Products: Shaping the Future Now from October 22-24 in Washington, DC. Patient organizations, patients, researchers, investors, government representatives, drug and device companies will discuss the challenges facing orphan product development and access.
“This vital meeting will provide important information for everyone living with a rare disease or working in orphan product development. Plenary sessions, as well as more-focused sessions, will be organized according to three central themes: policy, research and regulation, and special challenges," explains Peter L. Saltonstall, President and CEO, National Organization for Rare Disorders (NORD). “NORD’s expert speakers will address today's political and economic climate, recent advances in the science of rare diseases, and how all stakeholders can work together to drive progress for patients and their families," he adds.
Keynote speakers Robert M. Califf, MD, MACC, Vice Chancellor for Clinical and Translational Medicine, Director of Duke Translational Medicine Institute, speaking on Research and Regulation; Stephen P. Spielberg, MD, PhD, Deputy Commissioner, Medical Products and Tobacco, Office of the Commissioner, Food and Drug Administration speaking on Policy; and John J. Castellani, President & CEO of Pharmaceutical Research and Manufacturers of America (PhRMA) speaking for Special Challenges in Rare Diseases.
“This conference seeks to bring together patients and their advocates who share the same challenges and to recognize they are not alone facing the special challenges by patients, advocates, representatives and companies in the health care arena,” declares DIA Deputy Executive Director Carlos Fulcher.
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- Patients & Newly Diagnosed
- Healthcare Professionals