June is Scleroderma Awareness Month
Going Social to Spread the Word in 2011
FOR IMMEDIATE RELEASE
DANVERS, MASS. (May 31, 2011) – June is Scleroderma Awareness Month, and you can become an advocate for the Scleroderma Foundation by raising awareness and teaching others about this chronic, connective tissue disease. This month, join our 23 chapters and more than 145 support groups, as we work to spread the word about this devastating disease.
Teaming up with the Scleroderma Foundation in 2011 to spread awareness in the Twitterverse is ambassador and actress Kellie Martin (“Christy” and “ER”). Kellie will share important facts about scleroderma and how people can get involved to help find a cure for the disease. To receive Twitter updates from Kellie, follow @Kellie_Martin.
“Through the years, Kellie has showed her continued support for scleroderma patients and their families, as well as the Foundation. We are very excited to have her online support this year,” said Robert J. Riggs, the Scleroderma Foundation CEO. “We hope we can reach a greater audience with her help as we work diligently to find the cause and cure of the disease.”
In June, Scleroderma Foundation chapters and support groups will host “Stepping Out to Cure Scleroderma” walk-a-thons across the country to raise money for research, education and support programs. There are 53 events scheduled this year. In 2010, 44 walk-a-thons were held and raised more than $1.1 million for the Foundation.
Eight teams from Actelion Pharmaceuticals US, Inc., also will take part in the Escape from Alcatraz triathlon Sunday, June 5, in San Francisco. Twenty-four athletes will swim, bike and run to spread awareness about scleroderma and pulmonary arterial hypertension (PAH), one of the secondary conditions that many scleroderma patients also have.
There are many ways to get involved during Scleroderma Awareness Month. Here’s how people can help:
For more information about scleroderma and Scleroderma Awareness Month, visit www.scleroderma.org.
- Patients & Newly Diagnosed
- Healthcare Professionals