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Scleroderma Foundation
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eLetter #902 | January 29, 2021  

Michigan Parents of Children with Scleroderma February 2021

Parents of Children with Scleroderma February Support Group

VIRTUAL: February 3, 7:30-9:00 p.m. Eastern Time
Managing the Needs of All Those in The Household

Scleroderma affects your child, but it can also impact the whole family including you, your spouse, other children, and relatives. Luckily, you’re not alone. Join us for an online support group on February 3 from 7:30 to 9 p.m. Eastern Time to find strength and tips to support the whole household. We’ll start with welcome remarks and an opening icebreaker, then we’ll move on to an educational session with helpful tips, and end with a closing mindful moment. Register now and find support and hope in the community.

REGISTER

Ohio Sunday Sit Down

Sunday Sitdown

FACEBOOK LIVE: January 31, 1 p.m. Eastern Time (12 p.m. CT, 11 a.m. MT, 10 a.m. PT)

Join the Ohio Chapter for Sunday Sitdowns on the last Sunday of every month at 1 p.m. Eastern Time via Facebook Live. This is a time to connect with others who live with the challenges caused by scleroderma.

Please note, given the open, unsecure nature of Facebook, do not share private, personal information during this conversation.

WATCH

COVID-19 Research Update Creaky joints

COVID-19 & Rheumatic Disease Study

Our friends at Creakyjoints.org have reported on a new study published in The Lancet medical journal that indicates COVID-19 disease outcomes in people with rheumatic disease are improving over time. More research is needed and researchers stress that it's still necessary for people with rheumatic diseases to protect themselves against contracting COVID-19.

READ

Inspire Stories of Resilience

Portraits of Resilience

ONLINE February, 2021, 4-5 p.m. Eastern Time

What does resilience mean to you? Explore that question at “Portraits of Resilience," a live virtual story session February 11, 2021, hosted by Inspire and Health Story Collaborative, featuring patient advocates Estela Lugo and Chris Anselmo.

REGISTER

MSAB COVID-19 eLetter Graphic

COVID‑19 Information & Recommendations

Updated January 8, 2021

Information and frequently asked questions regarding the COVID-19 vaccines have been addressed by the Scleroderma Foundation's Medical & Scientific Advisory Board, to be used in consultation with your rheumatologist or other health care provider.

These guidelines, along with more information and recommendations for individuals affected by scleroderma about COVID-19 are posted at scleroderma.org/covid19. Please check this page from time to time for updates.

COVID‑19

NeedyMeds

Becoming an Empowered Patient

Join Andrea Baer, Executive Director of Mended Hearts, as she walks you through how to become an empowered patient. Learn how advocating for yourself and being an active part of your own healthcare team can improve your health. Register today as space is limited!

REGISTER

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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