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Scleroderma Foundation
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eLetter #900 | January 15, 2021  

MSAB COVID-19 eLetter Graphic

COVID‑19 Information & Recommendations

Updated January 8, 2021

Guidance on the COVID-19 vaccines has been issued by the Scleroderma Foundation's Medical & Scientific Advisory Board, to be used in consultation with your rheumatologist or other health care provider.

These guidelines, along with more information and recommendations for individuals affected by scleroderma about COVID-19 are posted at scleroderma.org/covid19. Please check this page from time to time for updates.

COVID‑19

SF Logo National Conference Tag

2021 National Conference Goes Virtual

Save the Date: July 17-28, 2021

We're excited to announce that the 2021 National Patient Education Conference will take place virtually.  The conference will be two days of workshops, panels, and speakers, July 17 and 18, Saturday and Sunday.

Details regarding workshop, speakers, and registration, and the virtual platform will be posted as they are finalized.

Michigan Webinar January 2021

Scleroderma Caregivers & Mental Health

VIDEO

Are you a caregiver for a loved one with scleroderma? We know the emotional challenges you may face, and we’re here to help. Watch our January webinar to learn about support services and resources to help you succeed.

Featuring Danielle Rice, a therapist and a PhD candidate at the Department of Psychology at McGill University, Montreal, Quebec.

READ

Clinical Trial Screening

Mental Health Survey

You can play an important part in addressing the mental health needs of the scleroderma community by completing a brief survey (seven minutes) created in partnership with the Foundation's Michigan Chapter and the Ginsberg Center at the University of Michigan.

Today, January 15, 2021, is the last day to respond to the survey. Anyone 18 years and older, who is diagnosed with scleroderma may participate. If you have any questions about the survey, please contact Laura Dyas: LDyas@scleroderma.org.

SURVEY

myPHteam COPD

myPHteam

Some people with pulmonary hypertension also have chronic obstructive pulmonary disease (COPD). Managing two chronic illnesses can be extremely hard! Join the discussion about this topic among others facing similar challenges:

myPHteam

Ticket to Work WISE ChooseWork

Services & Supports

WEBINAR: January 27, 2021; 3 p.m. Eastern

How can a Ticket to Work service provider help you reach your work goals? Find out during this month’s Work Incentive Seminar Event (WISE) webinar. ChooseWork will talk about the free services and supports available to eligible people with disabilities. Connect with a service provider who can help you on the path to financial independence through work.

WEBINAR

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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