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Scleroderma Foundation
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eLetter #808 | April 5, 2019  

Sundar Balasubramanian


Deep Breathing Might Have Benefits We're Only Beginning to Understand

Read an article in Discover magzine about one researcher's push to understand how an ancient yoga technique can change our cells. 

read the article

2019 Conference Video Promo


Get a Feel for the National Conference
July 19-20-21, Chicago, Illinois

If you've never been to the Scleroderma Foundation's National Patient Education Conference, you might not understand why so many people affected by scleroderma are so excited to attend year after year. 

Watch a brief video to catch a glimpse of their experience.

Register today. Early bird discount available until 5/22. Hotel info shared upon conference registration. Scholarship notifications sent mid-April.

Pulmonary Fibrosis Brochure Cover.jpg


Pulmonary Fibrosis in Systemic Sclerosis: Diagnosis and Management

An updated brochure (January 2019) that provides information about pulmonary fibrosis in systemic sclerosis has been posted on the Scleroderma Foundation website. scleroderma.org > patients & newly diagnosed > brochure downloads 

The Scleroderma Foundation thanks Mary Beth Scholand, M.D., Elizabeth Carr, M.D., and Tracy Frech, M.D., for their assistance the in preparation of this brochure.

scleroderma.org/downloads

Stepping Out Logo 2018 Be Part of the Cure - Web


Stepping Out to Cure Scleroderma 2019

Where are you Stepping Out this Spring?

Stepping Out to Cure Scleroderma is a fundraising event that brings together family and friends of those who have scleroderma. The monies raised by individuals and teams are used to fulfill the Scleroderma Foundation's three-fold mission of support, education, and research.

find more dates: scleroderma.org/steppingout

andrew and kseniya kobets wedding


Reach for the Cure

To celebrate their wedding day, Andrew Kobets, M.D., and his wife, Kseniya Kobets, M.D., donated to scleroderma research through the Reach for the Cure campaign in memory of Kseniya’s father, Aleksey Golubets, and Andrew’s mother, Alexandra Kobets.

“This gave us a way to share the joy of our wedding day with our dear parents, who taught us that the greatest joy is to help others,” Kseniya & Andrew Kobets.

The need is great. The time is now. The choice is yours. Please give generously: scleroderma.org/reachforthecure

 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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