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eLetter #787 | November 9, 2018  

YouTube 2018 Pulmonary Hypertension Chung

 

Video:  "Pulmonary Arterial Hypertension in Systemic Sclerosis in the Current Era"

At the 2018 National Patient Education Conference, we filmed a presentation by Lori Chung, M.D., M.S., Stanford Medicine, on Pulmonary Arterial Hypertension in Systemic Sclerosis in the Current Era. Dr. Chung reviewed the definition and frequency of pulmonary hypertension in systemic sclerosis. She discussed risk factors for and symptoms of pulmonary arterial hypertension in SSc, plus screening and diagnosis of PAH in connective tissue diseases. And, she presented treatment options and their response to therapies in the current treatment era.

watch this video & others from the 2018 conference

University of Tennessee Health Science Center


Research & Treatment Centers

The University of Tennessee Health Science Center

The Scleroderma Foundation has formal affiliations with nearly 50 scleroderma research and treatment centers in the U.S. To be designated as a center, a clinic must:

  • Demonstrate expertise in the care of patients with scleroderma.
  • Conduct scleroderma research (clinical and/or observational and/or laboratory-based).
  • Conduct educational activities about scleroderma, and provide information about the advances in the care and treatment of patients with scleroderma to health care professionals and the public.

In Tennessee, go to the University of Tennessee Health Science Center.

Dartmouth Geisel School of Medicine News
 

Stem Cell Transplantation May Aid Hard-to-Treat Scleroderma Patients

The Dartmouth Geisel School of Medicine News published an on October 22, 2018, by Timothy Dean that reported on a study conducted by researchers at the school and other collaborating institutions regarding systemic sclerosis and stem cell transplantation treatment.

read the full article

Join Inspire!
 

"First Follow Up Since Diagnosis"

The first time you go back to your rheumatologists office after your diagnosis can be a worrisome time.  Perhaps you had fears about being heard by your doctor?  Was your treatment correct?  Share your experience with others who have been recently diagnosed on Inspire.com, the Scleroderma Foundation's online support community.

Join the conversation at Inspire.com

andrew and kseniya kobets wedding

Kseniya & Andrew Kobets


Reach for the Cure

Andrew Kobets, M.D., and his wife, Kseniya Kobets, M.D., donated more than $2,250 for scleroderma research to celebrate their wedding day in memory of Kseniya’s father, Aleksey Golubets, and Andrew’s mother, Alexandra Kobets.

“This gave us a way to share the joy of our wedding day with our dear parents, who taught us that the greatest joy is to help others,” Kseniya & Andrew Kobets.

On November 27, Giving Tuesday, please give generously to help us reach for the cure.

donate today

watch the reach for the cure video

Voice Fall 2018 Cover

Winter Voice Published Online Only

If you are a subscriber to Scleroderma Voice, you should note that the winter edition (November) will be published online only.  By publishing one issue online, the Foundation reduces production costs and can use that savings toward other parts of our mission. 

Subscribers (Foundation members) will receive an email with a link to read the magazine online.

If you are a paid subscriber, please provide your current email address to ensure that you receive access to the winter Voice.

Contact webmaster@scleroderma.org,
or call (800) 722-4673.

 
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Actelion JSN 2018


Boehringer Ingelheim 2018 Platinum National Sponsor


Bayer 2018

2018 Gilead

 

United Therapeutics 2018 Bronze Conference Sponsor

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Arena Pharmaceuticals 2018 Corp Conf Sponsor

 

Corbus 2018 Corp Conf Sponsor

 

Genentech 2018 Corp Conf Sponsor

 

   

Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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