Support Education Research
Please leave this field empty
Michigan Chapter
Homepage | Forward to a Friend | Make a Donation
20th anniversary Scleroderma Foundation logo 72 dpi banner
eLetter #786 | November 2, 2018  

YouTube Localized Scleroderma Pappas 2018

 

Video:  Localized Scleroderma

At the 2018 National Patient Education Conference Lisa Pappas-Taffer, M.D., University of Pennsylvania, gave a presentation on localized scleroderma.  She discussed the different subtypes, such as morphea, and what clinically differentiates it localized from systemic sclerosis.

watch this video & others from the 2018 conference

Medical University of South Carolina Scleroderma Center


Research & Treatment Centers

The Medical University of South Carolina

The Scleroderma Foundation has formal affiliations with nearly 50 scleroderma research and treatment centers in the U.S. To be designated as a center, a clinic must:

  • Demonstrate expertise in the care of patients with scleroderma.
  • Conduct scleroderma research (clinical and/or observational and/or laboratory-based).
  • Conduct educational activities about scleroderma, and provide information about the advances in the care and treatment of patients with scleroderma to health care professionals and the public.

In South Carolina go to the Medical University of South Carolina.

exercise.jpg
 

Is it Safe to Exercise with Scleroderma?

AAn article by Staphanie Frade in The Australian Hosital Healthcare Bulletin (October 30, 2018) explores the question of exercise and scleroderma.  

Read the full article

Join Inspire!
 

"Falling and Tripping"

In your experience with scleroderma, do you deal with falling and tripping?  On Inspire.com, "Roxy1109" writes about her son who has limited scleroderma and falls quite often.  To share your experience with Roxy1109, join the conversation on Inspire.com, the Scleroderma Foundation's online support community.

Join the conversation at Inspire.com

Dee and Jake Burlile

Dee Burlile and son, Jake


Reach for the Cure

What is the promise of scleroderma research?

“That my children could live the rest of their lives without worrying and taking care of their mother.”

That's Dee Burlile’s answer.  Her kids have a slightly different answer. 

“I just want my mom back,” Jake, age 11.

Seven years ago, Dee’s three kids found her collapsed on the floor, which led to her diagnosis of systemic sclerosis in 2016.  Jake and his sister (13) and brother (15) have become caregivers to their mother.

Reach for the Cure.  donate today.

watch the reach for the cure video

Voice Fall 2018 Cover

Winter Voice Published Online Only

If you are a subscriber to Scleroderma Voice, you should note that the winter edition (November) will be published online only.  By publishing one issue online, the Foundation reduces production costs and can use that savings toward other parts of our mission. 

Subscribers (Foundation members) will receive an email with a link to read the magazine online.

If you are a paid subscriber, please provide your current email address to ensure that you receive access to the winter Voice.

Contact webmaster@scleroderma.org,
or call (800) 722-4673.

 
Quick Links
Advocacy
Contact Us
Become a Member
About Scleroderma
Calendar of Events
Online Chat
Store
Make a Gift
Home
 
facebook_32.png
twitter_32.png
2016 Instagram
Youtube_32x32.png
 

Actelion JSN 2018


Boehringer Ingelheim 2018 Platinum National Sponsor


Bayer 2018

2018 Gilead

 

United Therapeutics 2018 Bronze Conference Sponsor

reata_horizontal_logo-2018-Bronze Natl


Arena Pharmaceuticals 2018 Corp Conf Sponsor

 

Corbus 2018 Corp Conf Sponsor

 

Genentech 2018 Corp Conf Sponsor

 

   

Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

Powered by Blackbaud  Unsubscribe | Visit our web site | Contact Us | Donate
300 Rosewood Drive, Suite 105, Danvers, MA 01923 tel: 800-722-HOPE (4673)
© 2019 All rights reserved.