Support Education Research
Please leave this field empty
Scleroderma Foundation
Homepage | Forward to a Friend | Make a Donation
20th anniversary Scleroderma Foundation logo 72 dpi banner
eLetter #775 | August 17, 2018  
Sergio Jimenez MD Lifetime Achievement 2018

Lifetime Achievement Award: 
Sergio Jimenez, M.D.

Sergio Jimenez, M.D., of Thomas Jefferson University, was honored with the prestigious Lifetime Achievement Award at the Scleroderma Foundation's 2018 National Patient Education Conference in Philadelphia on July 28.  Dr. Jimenez’s 40-year career has been dedicated to advancing the treatment of individuals with scleroderma and to the study of clinical and molecular aspects of the disease and related conditions.  At the University of Pennsylvania, he established the Collagen Research Laboratories and the Scleroderma Center.  In 1987, Dr. Jimenez joined Thomas Jefferson University, where he serves as director of the Scleroderma Center.  Dr. Jimenez has served on the Foundation’s Medical & Scientific Advisory Board since its inception in 1998.  

read more at scleroderma.org/conference

 

Tulane University Medical School

 

Research & Treatment Centers

Tulane University School of Medicine - Tulane Lung Center

The Scleroderma Foundation has formal affiliations with nearly 50 scleroderma research and treatment centers in the U.S. To be designated as a “center,” a clinic must:

  • Demonstrate expertise in the care of patients with scleroderma. 
  • Conduct scleroderma research (clinical and/or observational and/or laboratory-based).
  • Conduct educational activities about scleroderma, and provide information about the advances in the care and treatment of patients with scleroderma to health care professionals and the public.

In Louisiana, go to the Tulane Lung Center at Tulane University School of Medicine in New Orleans.  

Nicole DeCredico Rheumatology Research Foundation Grant 2018
 

SSc Research Funded by Rheumatology Research Foundation

The Rheumatology Research Foundation awarded a "Resident Research Preceptorship" grant to Nicole DeCredico, M.D. of  Northwestern University, McGraw Medical Center to study interstitial lung disease and systemic sclerosis.  DeCredico's preceptor is Monique Hinchcliff, M.D., M.S.  A Resident Research Preceptorship introduces residents to the specialty of rheumatology and attracts promising physician-scientists to the field by supporting a full-time research experience.

read more

2018_KGS2_logo_WEB
 

Kids Get Scleroderma Too

October 26 & 27, Aurora, Colorado

The Rocky Mountain and Tri-State Chapters are excited to co-host “Kids Get Scleroderma Too” on October 26 and 27, 2018, at Children’s Hospital Colorado in Aurora, Colorado. This event is for youth and teens who have scleroderma, and their parents and siblings. Juvenile scleroderma experts from around the country will lead educational sessions and group discussions.  Friday night features a fun Halloween costume party for the whole family!  Scholarships are available.

register today: 2018KGS2.sclerodermatristate.org​

Join Inspire!
 

"Newly Diagnosed"

"Teacher9" is a member of the online scleroderma community at Inspire.com.  Her scleroderma was diagnosed four months ago and she's been posting about her situation as a teacher with chronic illness and her concerns about working long enough to retire with medical insurance vs. applying for Social Security Disability.  Perhaps you have a similar experience that might help Teacher9?    

join the conversation at inspire.com

Stepping Out Logo 2018 Be Part of the Cure
 

Stepping Out Walks in August and September

Wisconsin, Indiana, and Ohio still have August Stepping Out to Cure Scleroderma walks and 5K runs.  There are seven more fundraising walks during September in Illinois, Missouri, Massachusetts, and Washington State. 

August 19 - Germantown, WI
August 25 - Highland, IN & Cleveland, OH
September 8 - Springfield, IL & St. Louis, MO
September 9 - Topsfield, MA
September 15 - Seattle, WA
September 16 - Westfield, MA
September 22 - Dixon, IL
September 30 - Boston, MA

sign up to walk today!

Discover Understand Overcome square
 

Now Accepting Scleroderma Research Grant Applications

DEADLINE:  September 17, 2018

The Scleroderma Foundation's peer-reviewed grant program offers two distinct funding opportunities designed to foster the development of innovative and high quality research in fields related to scleroderma.  These are the New Investigator Grant and the Established Investigator Grant.  To apply or to learn more, follow the link below, or call 800-722-4673.  

research grant applications

 
Quick Links
Advocacy
Contact Us
Become a Member
About Scleroderma
Calendar of Events
Online Chat
Store
Make a Gift
Home
 
facebook_32.png
twitter_32.png
2016 Instagram
Youtube_32x32.png
 

Actelion JSN 2018


Boehringer Ingelheim 2018 Platinum National Sponsor


Bayer 2018

2018 Gilead

 

United Therapeutics 2018 Bronze Conference Sponsor

reata_horizontal_logo-2018-Bronze Natl


Arena Pharmaceuticals 2018 Corp Conf Sponsor

 

Corbus 2018 Corp Conf Sponsor

 

Genentech 2018 Corp Conf Sponsor

 

   

Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

Powered by Blackbaud  Unsubscribe | Visit our web site | Contact Us | Donate
300 Rosewood Drive, Suite 105, Danvers, MA 01923 tel: 800-722-HOPE (4673)
© 2019 All rights reserved.