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Scleroderma Foundation
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eLetter #759 | April 20, 2018  
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What's Waiting in Philly?

Learning from medical experts is a hallmark of the National Patient Education Conference. Here's a peek at what we're offering in Philadelphia, July 27-29.

"What They Should Have Told Me About Systemic Sclerosis When I First Met the Doctor." (PAH in scleroderma, John Varga, M.D.)

"Health Care Maintenance and Systemic Sclerosis: How Can My Rheumatologist and Primary Care Physician Best Work Together?" (Gastrointestinal Issues in Scleroderma, Tracy Frech, M.D., M.S.)

REGISTER ONLINE for the 2018 National Patient Education Conference: scleroderma.org/conference.

SSA See What You Can Do Online  

See What You Can Do Online

For over 80 years, Social Security has changed to meet the needs of our customers. Today, our easy, secure, and convenient-to-use online services allow you to do business with us from the comfort of your preferred location. From requesting a Social Security card to filing for retirement, our online services have got you covered. Check out our infographic, which shows what you can do online.

See what you can do online at Social Security

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Meet the Experts
"Living Well and Lung Health"
Saturday, May 19, 2018; 10 a.m. to 2 p.m.
San Diego, California

The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) invites you to its 12th annual FREE patient/family forum May 19 in San Diego. This year focuses on living well and lung health. The panel includes Xavier Soler, M.D., Ph.D., Gene Kallenberg, M.D., Francesca Polverino, M.D., Ph.D., Bernie Sunwoo, M.B.B.S., Jeremy Orr, M.D., and Juan Wisnivesky, Dr.P.H., M.D. Scleroderma experts Lesley Ann Saketkoo, M.D., M.P.H., and Kristen Highland, M.D. will be present and available for Q&A in breakout rooms. The Scleroderma Foundation's Kerri Connolly is the current Chair of the ATS PAR and is chairing the event.

RSVP by email to cwhite@thoracic.org no later than Wednesday, May 9, 2018 
Questions: Mr. Courtney L. White (212) 315-8640

read more

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Donate to Send a Person with Scleroderma to Conference

Everyone agrees the emotional lift and expert knowledge you get at Conference is worth the cost. But the cost to attend can be too great for many. The Scleroderma Foundation offers scholarships to first time attendees who have scleroderma or are a caregiver or a child of a parent with scleroderma. The money behind those scholarships comes from generous donors like you.

Please give generously to the conference scholarship fund

Hope Raisers IIa  

Raising Hope

Create your own fundraising event or participate in someone else's and raise money to overcome scleroderma!

A Hope Raiser event is a celebration, like a birthday or anniversary. It could be an athletic event like a local marathon or 5K. It could be a tribute or a memorial campaign in honor of a person with scleroderma. Or just about anything you can think of to raise money.

Create the event through our Hope Raiser website and use robust online fundraising tools to recruit others to participate in your event and to ask everyone you know to donate.

Be a Hope Raiser!

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Support Groups of Georgia

Support groups enable individuals with scleroderma to connect and exchange information with others who face similar problems. Groups also host expert speakers from time to time. There are many Scleroderma Foundation-affiliated support groups around the country, although some geographic areas are less well represented. Each week, we highlight support groups associated with a particular chapter. The Georgia Chapter hosts three groups.

Georgia support groups

CLINICAL TRIAL UPDATE
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CATALYST Trial

If you have scleroderma and PAH (pulmonary arterial hypertension), please visit www.CATALYSTtrial.com to learn more about a research study evaluating a once daily oral drug.

learn more

 
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Diamond
National Sponsor
Actelion JSN 2018


Platinum Conference Sponsor

Boehringer Ingelheim


Corporate Sponsors
Genentech


 
 

 

   

Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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