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Scleroderma Foundation
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eLetter #739 | December 1, 2017  
 YouTube Mayes FAQ 2017

Video: Frequently Asked Questions

Maureen D. Mayes, M.D., discusses the following points and take questions from the audience at the Scleroderma Foundation's 2017 Patient Education Conference.  1) How many cases of scleroderma are there and is this changing over time?  2) Clinical update on current and future therapy. 3) Research update on finding the cause and cure. 4) Success stories from the Scleroderma Foundation’s Research Grant program – past, current, and future.

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 ACA Open Enrollment 2018

Open Enrollment Ends Dec. 15 for 2018 Health Insurance Under ACA

If you need health insurance for 2018 via the individual marketplace of the Affordable Care Act, the open enrollment period is now through December 15.  Anyone who doesn't have coverage through a job, Medicare, Medicaid, the Children's Health Insurance Plan (CHIP), or other qualifying coverage is eligible to apply.  Visit the website to learn more and sign up.

JoinMe webinar

Grassroots Advocacy Training

Public policy advocacy on behalf of people affected by  scleroderma at both the state and federal level is crucial to making a difference in their lives.  The Scleroderma Foundation now offers monthly grassroots advocacy training webinars. 

8 Ways to Stay Healthy this Winter

By Sally Wadyka

It takes more than hand-washing. Here’s an easy guide to preventing infection.

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Stress, Depression and the Holidays: Tips for Coping

By Mayo Clinic Staff

Stress and depression can ruin your holidays and hurt your health. Being realistic, planning ahead and seeking support can help ward off stress and depression.

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Journal of Scleroderma
and Related Disorders

The Journal of Scleroderma and Related Disorders is an international, multi-disciplinary, peer-reviewed publication targeted to scientists and clinicians interested in systemic sclerosis, scleroderma, and other related autoimmune and fibrotic diseases.  The journal publishes high quality, original research articles on the epidemiology, natural history, pathophysiology, diagnosis, treatment and outcome of these diseases as well as reviews and thought-provoking editorials and commentaries.

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 phildelphia Patient Ed save the date 2018 

2018 National Patient Education Conference

Sign up for e-Alerts to stay up to date on the 2018 National Patient Education Conference in Philadelphia, Pennsylvania, July 27-29.

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 EOY Appeal 1 eLetter

Support - Education - Research

Together, we make a difference for thousands of people affected by scleroderma.  For the person who is newly diagnosed and looking for reliable answers, for the caregiver who is seeking advice on how to better help their loved one, for those living with scleroderma advocating for a better quality of life, and for all who share the common hope of finding a cure, we make a difference when we stand together. 

The scleroderma community needs you now more than ever.  Please make this a season of hope by taking action to eliminate scleroderma and making a year-end gift today to the Scleroderma Foundation.  

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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