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Scleroderma Foundation
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eLetter #730 | September 29, 2017  

Video – Evaluation and Management of Scleroderma Lung Disease

Grand Lecture

Watch the complete Grand Lecture by Aryeh Fischer, M.D., given at the Scleroderma Foundation’s National Patient Education Conference in July of 2017.

Watch the Grand Lecture

PAH in Systemic Sclerosis – Learn More in a Special Section in the Upcoming Issue of the Scleroderma Voice

Scleroderma VoicePulmonary arterial hypertension (PAH) is a serious but rare condition that develops in approximately 8% to 12% of patients with systemic sclerosis. Learn more about risk factors, screening tests, and treatment options for PAH in a special section of the Scleroderma Voice magazine, the member magazine of the Scleroderma Foundation. The special section also includes a tear-out questionnaire to share with your physician. The next issue of the Voice is coming to your mail box in early October. If you don’t receive the Voice, click here to become a Scleroderma Foundation member or renew your annual membership.

Learn more

Support Group Volunteer of the Year Award – Del Anselmo of Baton Rouge, Louisiana

Award

Support Groups are an integral part of the Scleroderma Foundation’s mission of support, education, and research.

This year’s Support Group Leader of the Year, Del Anselmo, has been an active leader in Baton Rouge, Louisiana for at least 20 years. With no chapter in her area, she works tirelessly, mostly quietly, but very effectively to bring help and hope to the foundation family in her community. When the National Patient Education Conference was in New Orleans in 2016, Del was a major catalyst and partner to bring forth volunteers and to rally patients and their families to attend. Congratulations, Del Anselmo, our 2017 Support Group Leader of the Year.

Learn more

“Misleading Food Labels” from the Arthritis Foundation

Food LabelsThe Arthritis Foundation has prepared a helpful review of some common health claims you’ll see on food labels, and the truth behind them.

Learn more

Finding Purpose After Diagnosis

Dee BurlileEach person affected by scleroderma has their own unique story to tell. The Scleroderma Foundation understands just how important these collective stories are and creates a place for the patient’s voice to be heard. It is imperative that our legislators hear firsthand from those living with scleroderma. As a scleroderma patient, Dee Burlile joined the foundation at Capitol Hill Day to encourage legislators to address the needs of people with scleroderma.

"I understand that those of us with scleroderma need to speak with a unified voice. The Scleroderma Foundation is committed to improving the lives of people with scleroderma."

Please make a donation to the Scleroderma Foundation. Your gift ensures that we are able to strengthen advocacy on behalf of people affected by scleroderma.

Read more about Dee Burlile and how she found purpose after diagnosis.

 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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