Preparing for and tracking the outcomes from medical appointments for pulmonary hypertension is challenging and requires a well-organized approach. The Pulmonary Hypertension
Association created an Empowered Patient OnlineToolkit that gives you what you need to make the most of every visit and to keep yourself organized.
Disabilities don’t necessarily mean you can’t lead a productive life. ReasonableAccommodations in the workplace are part of the American with Disabilities Act to protect people who have disabilities on the job. Ticket to Work
is a program of the Social Security Administration that allows people
who receive SSI or
SSDI to work and earn a paycheck. Follow the link below to read this
article published by the Social Security Administration to learn the
The Yoga Center in Reno, Nevada presented
at the 2017 Patient Education Conference in Arizona. They offer yoga
designed specifically for people with scleroderma. Even if you don’t
live near Reno, you can still benefit from their
programs through an instructional DVD. Follow the link below to learn
can honor a loved one who has scleroderma by making a tribute or
memorial donation. Visit the Scleroderma Foundation website and click
“donate now”. The donation form gives you the option
to indicate whether it’s a tribute or memorial gift, and
to enter the honoree’s name, plus the name and address of the person to
notify that the gift has been made. You, too, will receive an email
receipt. Your gift creates hope for everyone fighting scleroderma
by helping to fund the largest peer-reviewed research
program for scleroderma in the country.
Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
The Scleroderma Foundation is a qualified national nonprofit operating under 501(c)(3) status. The foundation’s federal tax identification number is 52-1375827. Our primary goal is to raise funds for our three-fold mission of support, education and research. The foundation has 20 active chapters and 160 support groups across the country.