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Scleroderma Foundation
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eLetter #725 | August 25, 2017  

Empowered Patient

Preparing for and tracking the outcomes from medical appointments for pulmonary hypertension is challenging and requires a well-organized approach.  The Pulmonary Hypertension Association created an Empowered Patient Online Toolkit that gives you what you need to make the most of every visit and to keep yourself organized.   

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"You're Asking ME??!?"

By: Childhood Arthritis and Rheumatology Research Alliance

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The Childhood Arthritis and Rheumatology Research Alliance (CARRA) published a helpful article about balancing traditional and complementary therapies.

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Ticket to Work & Reasonable Accommodations

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Disabilities don’t necessarily mean you can’t lead a productive life. Reasonable Accommodations in the workplace are part of the American with Disabilities Act to protect people who have disabilities on the job. Ticket to Work is a program of the Social Security Administration that allows people who receive SSI or SSDI to work and earn a paycheck.  Follow the link below to read this article published by the Social Security Administration to learn the facts. 

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Yoga CenterThe Yoga Center, Reno, NV

Conference Exhibitor/Presenter

The Yoga Center in Reno, Nevada presented at the 2017 Patient Education Conference in Arizona. They offer yoga designed specifically for people with scleroderma. Even if you don’t live near Reno, you can still benefit from their programs through an instructional DVD. Follow the link below to learn more.

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Tribute and Memorial Gifts

lab researcher imageYou can honor a loved one who has scleroderma by making a tribute or memorial donation. Visit the Scleroderma Foundation website and click “donate now”. The donation form gives you the option to indicate whether it’s a tribute or memorial gift, and to enter the honoree’s name, plus the name and address of the person to notify that the gift has been made. You, too, will receive an email receipt. Your gift creates hope for everyone fighting scleroderma by helping to fund the largest peer-reviewed research program for scleroderma in the country. 

Make your tribute or memorial gift today.

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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