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Scleroderma Foundation
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eLetter #715 | June 9, 2017  
Scleroderma Approved For DOD Funding for FY17

thank youThanks to your advocacy efforts, scleroderma remains on the “approved” list for funding as part of the FY2017 Peer-Reviewed Medical Research Program (PRMRP) by the U.S. Department of Defense (DOD).

The funding opportunity announcements for FY2017 have been released by the DOD:

Dept. of the Army -- USAMRAA
DOD Peer Reviewed Medical Discovery Award
Synopsis

Dept. of the Army -- USAMRAA
DOD Peer Reviewed Medical Focused Program Award
Synopsis

Dept. of the Army -- USAMRAA
DOD Peer Reviewed Medical Investigator-Initiated Research Award
Synopsis

Dept. of the Army -- USAMRAA
DOD Peer Reviewed Medical Technology/Therapeutic Development Award
Synopsis

ats-logo.gifScleroderma Week with ATS

Now through June 10 is Scleroderma Week at the American Thoracic Society (ATS). Highlights of the week include the Patient Education Day and a live webinar taking place 10 a.m. to 2 p.m. Saturday, June 10.

Expert material was developed with PAR Partner Kerri Connolly, of the Scleroderma Foundation, and ATS leaders Mitch Olman, M.D.; and Kristin Highland, M.D.

 

Hard Word. Harder Disease. Sign the Pledge.

As Scleroderma Awareness Month continues throughout June, please remember to visit www.HardWord.org and sign the pledge to let others know about scleroderma.

Add your voice to scleroderma awareness.

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New Research and Treatment Center in Ohio

We are pleased to announce a new Research and Treatment Center at the University of Cincinnati Medical Center. The CTD-ILD and Scleroderma Clinic has been added to our growing list of designated centers.

To be designated as a Scleroderma Center on our website, institutions must: 

  • Demonstrate expertise in the care of patients with scleroderma
  • Conduct scleroderma research (clinical and or observational and/or laboratory-based)
  • Conduct educational activities about scleroderma, and provide information about the advances in the care and treatment of patients with scleroderma to health care professionals and the public.

All institutions designated as a center have been reviewed by the Scleroderma Foundation's Medical and Scientific Advisory Board to ensure patients are provided with knowledgeable resources about diagnosis, care and research.

Find a center >>

Discover More About Pulmonary Hypertension

pha on the road.jpgDid you know up to 12 percent of scleroderma patients also have pulmonary hypertension? Learn more information about this and more from medical professionals and have the opportunity to network with other patients and caregivers at PHA on the Road.

PHA on the Road is a FREE all-day program taking place in St. Paul, Minn; Providence, R.I; Portland, Ore. and Pittsburgh, Penn. Be sure to register today!

 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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