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|eLetter #710 | May 5, 2017
Registration Now Open for World Scleroderma Day Virtual Walk
To commemorate World
Scleroderma Day on June 29, 2017,
the National Office of the Scleroderma Foundation is once again
hosting a VIRTUAL “Stepping Out to Cure Scleroderma”
walk-a-thon! Last year's event raised more than $12,000 for the Foundation's programs and services.
The National World Scleroderma Day Virtual Walk is connected to “Stepping Out to Cure Scleroderma”, the Foundation’s premier fundraising event.
Unfortunately, “Stepping Out to Cure Scleroderma” walks
do not occur in every city across America. But it is important to the Foundation that everyone has an opportunity
to participate in the walk in some way. It is an easy and fun
way to make a difference by raising funds for those living with scleroderma.
Before you begin planning your
Virtual Walk, check and see if there is a local walk
near you. Many of our 20 chapters are hosting
walks this year and even have their own virtual component in the event you cannot
attend. We do encourage you to
participate locally whenever possible.
Learn more about the World Scleroderma Day Virtual Walk and register to participate >>
New Scleroderma Research Center in Ohio
We are pleased to announce a newly designated scleroderma research center. University of Cincinnati Medical Center's CTD-ILD and Scleroderma Clinic has been added to our growing list.
To be designated as a scleroderma center on our website,
- Demonstrate expertise in the care of patients with scleroderma
- Conduct scleroderma research (clinical and or observational and/or laboratory-based)
- Conduct educational activities about scleroderma, and provide
information about the advances in the care and treatment of patients
with scleroderma to health care professionals and the public.
All institutions designated as a center have been reviewed by the Scleroderma Foundation's Medical and Scientific Advisory Board to ensure patients are provided with knowledgeable resources about diagnosis, care and research.
Learn more about this and other centers >>
Free Patient Education Day in Pittsburgh, PA
The Scleroderma Foundation, along with the American Thoracic Society (ATS) and University of Pittsburgh Medical Center (UPMC), will host a free patient education day is being held in conjunction
with the “Scleroderma Week at the ATS” program — a part of the Lung
Disease Week at the ATS initiative.
The event will be held from 10 a.m. to 3 p.m. Saturday, June 10, 2017, in the Cedar Room at the DoubleTree by Hilton Pittsburgh-Cranberry; 910 Sheraton Drive, Mars, PA.
Download a flyer >>
If you’d like to attend the event, RSVP to Molly Paradis at MParadis@scleroderma.org no later than Monday, June 5, or call (800) 722-4673, Ext. 200. If responding by email use subject line — June 10th Pittsburgh Education Event.
|Congratulations, Dr. Shapiro!
Since 2004, the
CDPHP Physicians’ Academy has recognized more than 50 Upstate NY
physicians for their outstanding commitment to promoting quality health
care in the region.
Four more physicians were recently inducted,
including Dr. Lee Shapiro, a rheumatologist and scleroderma specialist
in our region. He developed and directs the Steffens Scleroderma Center,
the only such clinical and research center in Upstate
As a physician-guided health plan, CDPHP takes
great pride in honoring these individuals and celebrating their
contributions. Please see the attached press release for details on this
Read more >>
Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.