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Scleroderma Foundation
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eLetter #710 | May 5, 2017  

Registration Now Open for World Scleroderma Day Virtual Walk

stepping out web sized logoTo commemorate World Scleroderma Day on June 29, 2017, the National Office of the Scleroderma Foundation is once again hosting a VIRTUAL “Stepping Out to Cure Scleroderma” walk-a-thon! Last year's event raised more than $12,000 for the Foundation's programs and services.

The National World Scleroderma Day Virtual Walk is connected to “Stepping Out to Cure Scleroderma”, the Foundation’s premier fundraising event. Unfortunately, “Stepping Out to Cure Scleroderma” walks do not occur in every city across America. But it is important to the Foundation that everyone has an opportunity to participate in the walk in some way. It is an easy and fun way to make a difference by raising funds for those living with scleroderma.

Before you begin planning your Virtual Walk, check and see if there is a local walk near you. Many of our 20 chapters are hosting walks this year and even have their own virtual component in the event you cannot attend. We do encourage you to participate locally whenever possible.

Learn more about the World Scleroderma Day Virtual Walk and register to participate >>

New Scleroderma Research Center in Ohio

Button Find a Research and Treatment CenterWe are pleased to announce a newly designated scleroderma research center. University of Cincinnati Medical Center's CTD-ILD and Scleroderma Clinic has been added to our growing list.

To be designated as a scleroderma center on our website, institutions must:

  • Demonstrate expertise in the care of patients with scleroderma
  • Conduct scleroderma research (clinical and or observational and/or laboratory-based)
  • Conduct educational activities about scleroderma, and provide information about the advances in the care and treatment of patients with scleroderma to health care professionals and the public.

All institutions designated as a center have been reviewed by the Scleroderma Foundation's Medical and Scientific Advisory Board to ensure patients are provided with knowledgeable resources about diagnosis, care and research.

Learn more about this and other centers >>

Free Patient Education Day in Pittsburgh, PA

The Scleroderma Foundation, along with the American Thoracic Society (ATS) and University of Pittsburgh Medical Center (UPMC), will host a free patient education day is being held in conjunction with the “Scleroderma Week at the ATS” program — a part of the Lung Disease Week at the ATS initiative.

The event will be held from 10 a.m. to 3 p.m. Saturday, June 10, 2017, in the Cedar Room at the DoubleTree by Hilton Pittsburgh-Cranberry; 910 Sheraton Drive, Mars, PA.

Download a flyer >>

If you’d like to attend the event, RSVP to Molly Paradis at MParadis@scleroderma.org no later than Monday, June 5, or call (800) 722-4673, Ext. 200. If responding by email use subject line — June 10th Pittsburgh Education Event.

Congratulations, Dr. Shapiro!

Shapiro, LeeSince 2004, the CDPHP Physicians’ Academy has recognized more than 50 Upstate NY physicians for their outstanding commitment to promoting quality health care in the region.

Four more physicians were recently inducted, including Dr. Lee Shapiro, a rheumatologist and scleroderma specialist in our region. He developed and directs the Steffens Scleroderma Center, the only such clinical and research center in Upstate NY.

As a physician-guided health plan, CDPHP takes great pride in honoring these individuals and celebrating their contributions. Please see the attached press release for details on this year’s inductees.

Read more >>

 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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