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Scleroderma Foundation
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eLetter #709 | April 28, 2017  

EULAR Recommendations for Scleroderma Treatment Updated

A task force of 32 scleroderma experts from Europe and United States have updated the 2009 European League Against Rheumatism (EULAR) recommendations for the treatment of scleroderma, with a particular attention made toward new therapeutic questions. Sixteen recommendations were developed that address several scleroderma-related complications, including Raynaud Phenomenon, digital ulcers, pulmonary arterial hypertension (PAH), skin and lung disease, renal complications and gastrointestinal involvement.

Read the full abstract >>

Tips on Asking for Help

Sticky Note Helpful tipsLiving with a chronic condition, like scleroderma, there are times when you most likely will need to ask for help. But, it can be hard and you don't want to be burdensome to your family or friends. What are some ways that you can ask for help of others? Our frends at Caring Voice Coalition have put together some tips to make asking for help a little easier.

Learn more from Caring Voice Coalition >>

What You Should Know About Oxygen Therapy

oxygen.jpgA popular topic from the Pulmonary Hypertension Association's "On the Road" sessions has been "Oxygen: How to Manage It At Home, At Work and On the Go." The session focused on how oxygen therapy can improve PH symptoms, and how patients and their caregivers can learn more about therapies available.

Read more from PHA >>

PHA on the Road is a FREE, day-long education and support program for patients living with PH and their family members. Cities and dates for 2017 events will be announced soon.

Important Notice for Verizon Email Users

Email Keyboard KeysThis is an important notice for our eLetter subscribers who have Verizon (@verizon.net) email addresses. Verizon recently announced that it will be shutting down its email service, affecting more than 4.5 users.

Over the next few months, Verizon will notify its customers to migrate their email address as-is to AOL – or abandon the address. People who choose the first option will continue to use the same @verizon.net email address and you can continue to email them. If they chose a different provider (e.g. Gmail, Outlook, Yahoo, etc.) or do nothing, their Verizon.net email address will be deleted by Verizon after 180 days of inactivity.

Please take action so you don't miss our weekly eLetter. If you do change your email address, please let us know so we can update your record and you can continue to receive communications from the Scleroderma Foundation.

For more information, visit the Verizon website for details.


 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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