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Scleroderma Foundation
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eLetter #707 | April 14, 2017  

100 Days - Conference

We are less than 100 days until the opening of the 19th annual National Patient Education Conference by the Scleroderma Foundation.

Be sure to sign-up for email alerts to be notified about keynote speakers, workshop sessions, hotel information and more. You also can learn more about the conference and register at www.scleroderma.org/conference

We hope to see you in Phoenix in July!

Save the Date: Capitol Hill Day 2017

Attention, advocates! Please mark Wednesday, October 25, 2017 as this year’s Capitol Hill Day. Patients, caregivers, chapter leaders and foundation staff spend a full day meeting with local legislators to share personal accounts of how scleroderma affects lives. 

For more information about this year’s advocacy efforts, please visit our Advocacy page and sign up to receive email alerts about our action on Capitol Hill in Washington, D.C. Registration and scholarship information will be announced later this spring. More information will also be available at the National Patient Education Conference this July.

There are many ways to be an advocate beyond going to Capitol Hill. Please consider signing up to receive action alerts for advocacy opportunities in your community.

Joy in Caregiving: Have Fun with your Loved One

Heart and flowersIf you're a caregiver for someone living with scleroderma or any other illness, it can be easy to lose sight of quality of life and spending time with one another. By connecting more through fun and relaxing activities and setting priorities, you can also be helping your family member or friend, as well as your own health and mental well-being.

AARP recently wrote an article to discuss this topic more. Read more here

It's Walk Season - Time to Register!

Stepping OutStepping Out to Cure Scleroderma walk and run events are taking place all over the U.S. in the coming weeks and months. These are a great opportunity to support the Scleroderma Foundation and those living with the disease.

To find an event near you or to register, please visit www.scleroderma.org/steppingout. We're adding more events every week. You can also reach out to your local chapter or support group to see if they are hosting an event and how you can get involved for an excellent cause!

 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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