Attention, advocates! Please mark Wednesday, October 25, 2017
as this year’s Capitol Hill Day. Patients, caregivers, chapter leaders
and foundation staff spend a full day meeting with local legislators to
share personal accounts of how
scleroderma affects lives.
For more information about this year’s advocacy efforts, please visit our
page and sign up to receive email alerts about our action on Capitol
Hill in Washington, D.C. Registration and scholarship information will
later this spring. More information will also be available at the
National Patient Education Conference this July.
There are many ways to be an advocate beyond going
to Capitol Hill. Please consider signing up to receive action alerts for
advocacy opportunities in your community.
Joy in Caregiving: Have Fun with your Loved One
If you're a caregiver for someone living with scleroderma or any other illness, it can be easy to lose sight of quality of life and spending time with one another. By connecting more through fun and relaxing activities and setting priorities, you can also be helping your family member or friend, as well as your own health and mental well-being.
AARP recently wrote an article to discuss this topic more. Read more here
It's Walk Season - Time to Register!
Stepping Out to Cure Scleroderma walk and run events are taking place all over the U.S. in the coming weeks and months. These are a great opportunity to support the Scleroderma Foundation and those living with the disease.
Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
The Scleroderma Foundation is a qualified national nonprofit operating under 501(c)(3) status. The foundation’s federal tax identification number is 52-1375827. Our primary goal is to raise funds for our three-fold mission of support, education and research. The foundation has 20 active chapters and 160 support groups across the country.