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Scleroderma Foundation
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eLetter #702 | March 10, 2017  

We Got the Gold

The Scleroderma Foundation is pleased to announce that we have demonstrated a commitment to transparency by being awarded Gold Participant status on Guidestar.   A national charity that ranks

GX-Gold-Participant-M.png nonprofits, Guidestar provides current and comprehensive information to potentials donors.  Guidestar is generally regarded as the preeminent online destination of donors when researching nonprofits.  

Scholarship Deadline Fast Approaching

The foundation's National Patient Education Conference brings hope to those who may feel alone in the fight against scleroderma.  Thanks to the generous support of many donors and chapters, conference scholarships are now available to the 20172017 Conference Slider Save the Date National Patient Education Conference to be held in Chandler, Arizona from July 21-23. It's important to note that scholarships not only cover registration costs but can be used to offset hotel and travel costs.  Be sure to apply today as the deadline is March 16!

Apply now 

Understanding Gastroparesis

Gastroparesis, also called delayed gastric emptying, is a disorder that slows or stops the movement of food from the stomach to the small intestine.digestive-Gastroparesis.jpg Normally, the muscles of the stomach, which are controlled by the vagus nerve, contract to break up food and move it through the gastrointestinal (GI) tract.

To learn more, read the article.

 

Interesting PAH Study

As a fellow in 2006, Tim Lahm, M.D. — now director of pulmonary research and co-director of the Pulmonary Hypertension Program at the Indiana University School of Medicine — proposed what he considered to be a credible research project. Knowing that some forms of pulmonary hypertension (PH) are found more often in women than men, his idea was to focus on the differences between genders with regard to the development of WHO Group 1 PH (PAH, pulmonary arterial hypertension).

Read more here. 

 

 

 

 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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