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Scleroderma Foundation
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eLetter #701 | March 3, 2017  

Check Out Our Podcast

The foundation is pleased to release the newest tool in its communications arsenal, the Scleroderma Foundation Podcast.  The podcast will be recorded four times annually and feature a member of the national office staff, a representative from the foundation's Medical and Scientific Advisory Boardpodcast 1 as well as a chapter leader.  In the initial episode, available below, guests included foundation CEO Robert Riggs, board vice chair Carol Feghali-Bostwick and Stephanie Somers Gresh, the executive director of the Greater Chicago Chapter.  All three bring unique and interesting perspectives.

Listen to the podcast
 

Scholarship Deadline Almost Here

The foundation's National Patient Education Conference brings hope to those who may feel alone in the fight against scleroderma.  Thanks to the generous support of many donors and chapters, conference scholarships are now available to the 20172017 Conference Slider Save the Date National Patient Education Conference to be held in Chandler, Arizona from July 21-23. It's important to note that scholarships not only cover registration costs but can be used to offset hotel and travel costs.  Be sure to apply today as the deadline is March 16!

Apply now 

Attention Support Group Leaders Past and Present: Take the Survey

Researchers north of the border are conducting the second phase of a survey geared towards scleroderma support group leaders.  Led by Dr. Brett Thombs, a group at McGill University’s Jewish General Hospital is lookingjewish general for patients who have or are leading a support group to complete the anonymous survey.  The group greatly values for feedback as you assess your experiences as a support group leader as it will help mold a curriculum for prospective leaders across the United States and Canada.  

Follow the link to complete.

 

Arthritis Foundation Offering College Scholarships

The Arthritis Foundation is proud to offer the Winterhoff Arthritis Scholarship Program; the first college scholarship program of its kind in the country for students with rheumatic diseases.  This scholarship was made possible due to the generous donation by the late Walter J. and Kathryn M. Winterhoff.  The Winterhoffs’ were passionate about higher education and the work of the Arthritis Foundation. 
 
Since 2010, the Winterhoff Arthritis Scholarship granted scholarships toAF-Logo-color500-Sphere.jpg students in the Pacific Southwest and in 2017, this opportunity is available nationwide! 
 
2017-2018 Winterhoff Arthritis Scholarship information and application here: www.arthritis.org/winterhoffscholarship
 
Additional college scholarship opportunities are listed on the Juvenile Arthritis, Transition website under “Scholarships” here: http://www2.arthritis.org/e/71492/resource-library/4xhhkn/366713753 

 

Preparation is Key


When living with chronic illness, especially a rare one, doctor visits are frequent and part of the routine. To be your best advocate, you must prepare for your visits and the following is a checklist that can help. After all, your relationship with your doctor is one of the most important you will have, and you are your own best advocate. You will better advocate for yourself if you are an active participant in every appointment.

Follow the link below to learn more.

 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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