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Scleroderma Foundation
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eLetter #700 | February 24, 2017  

Scholarship Deadline Rapidly Approaching!

The national conference bribngs hope to those who may feel alone in the fight against scleroderma.  Thanks to the generous support of many donors and chapters, conference scholarships are now available to the 20172017 Conference Slider Save the Date National Patient Education Conference to be held in Chandler, Arizona from July 21-23.  Be sure to apply today as the deadline is March 16!

Apply now 

Check Out Our FY 2015-16 Annual Report

The foundation's FY 2015-16 Annual Report is now available for your viewing pleasure.  Featuring a new look, the report covers the foundation's three key tenets: support, education and research.  No report would beannual report cover complete without a recap of Capitol Hill Day, our signature Stepping Out to Cure Scleroderma walks as well as financial information.  Click here to view the report.

 

Do You Have Pulmonary Hypertension (PAH)?

We need your input!

Clinical trials for potential new treatments, pharmaceutical companies need and value input from patients in the deverlopment of clinical trials for potential new treatments.  A bio-pharmaceutical company is currently developing a treatment for pulmonary hypertension (PAH) and the FDA stipulates that they solicit and ultimately incorporatesurvey clip patient feedback.  Your participation in this survey is critical to the development of potential new therapies for scleroderma and related conditions.  Thank you for playing an active role in this process. Your voice can help lead to promising results in the near future! Please take this survey today!
 

 

 

 

Rare Disease Day is February 28

Rare Disease Day happens on the last day of February annually and is celebrated in 80 countries.  The main objective of the day is to raise awareness about scleroderma as well as a plethora of other rare diseases and the impact they have on patients’ lives.  The campaign primarily targets the general public and also seeks to heighten awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and rdd-logo-transparent.pnganyone else who has a genuine interest in rare diseases.  Please visit www.rarediseaseday.org for more information.

Ten Years is a Long Time

The foundation salutes Director of Programs and Services Kerri Connolly on 10 years of service.  As a driving force behind the growth and expansion of the Patient Education Conference, Kerri is integral in developing newkerri new headshot programs and initiatives throughout the foundation's world.  She also represents the foundation on the American Thoracic Society's Public Advisory Foundation, ensuring that the needs of scleroderma patients and researchers alike are heard.  Congrats Kerri!

Stay in the Loop

Want to stay informed on current health-care legislation in Washingtoncap hill 2 WE USE IN BOOK final.jpgthast affect funding for scleroderma research?  Sign up for our advocacy alerts today by following this link!  
 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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