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Scleroderma Foundation
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eLetter #699 | February 17, 2017  

Conference Registration Now Open!

In a little over 150 days, the foundation will hold the 19th renewal of its National Patient Education Conference deep in the Arizona desert in2017 Conference Slider Save the Date Chandler, Arizona.  Registration for the conference, to be held July 21-23, is now open and those interested are encouraged to sign up today as space is limited.  The 2016 event drew a record crowd and this summer’s festivities are sure to even raise the bar higher.  Preparations are well underway for a comprehensive program featuring an esteemed lineup of speakers from throughout North America. In addition to sessions, there’s an awards luncheon, dinner with entertainment as well as a comprehensive array of exhibitiors.

Register Here >>

Attention Support Group Leaders Past and Present: Take the Survey

Researches north of the border are conducting the second phase of a survey geared towards scleroderma support group leaders.  Led by Dr. Brett Thombs, a group at McGill University’s Jewish General Hospital isjewish general looking for patients who have or are leading a support group to complete the anonymous survey.  The group greatly values for feedback as you assess your experiences as a support group leader as it will help mold a curriculum for prospective leaders across the United States and Canada.  Follow the link to complete.

European Researchers Unveil Study

The Scleroderma European Observational Study was conducted by a group of renowned scientists throughout the continent.  The team focused on theeuro flags success rates of different treatment approaches while studying a wide and diverse group of patients with varying degrees of scleroderma.  Here's their comprehensive findings.

Be Prepared For a Weather Emergency


During the winter months in the northeast and Midwest, power outages are likely due to winter weather while in other parts of the country, the risk is prepared elevated for hurricanes and tornadoes.  As such, check out this link for great tips on being all set when an emergency strikes.




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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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