Time is Almost Up!
Research Survey Closing Soon
If you are a patient with systemic scleroderma(systemic sclerosis), you are being asked to participate in a research study on the role of environmental factors in scleroderma. Environmental
factors are suspected to play a role in the development of scleroderma. This is a research project being conducted by the Medical University of South Carolina (MUSC).
You can only participate in this survey if you are a patient with scleroderma. Your participation in this research study is voluntary.
The study involves filling an online survey that will take approximately 15 minutes. Your responses will be confidential. The survey questions will be about the type of your disease, your first symptom, the address(es) you live/lived at, and your occupation(s) when you developed your
first symptom or prior to developing your first symptom. We will also collect identifying information such as your name, age, gender, race, date of birth, current mailing address, and e-mail address. We will review public records on air and soil quality for your address to determine if there may be common environmental factors associated with scleroderma.
We will keep your information confidential. To help protect your privacy, your survey answers will be coded and will be stored securely such that only the members of the research team will have access to your identifying information.
If you have any questions about the research study, please contact Dr. Carol Feghali-Bostwick or Dr. Celine Ward at (843) 972-8944 or at firstname.lastname@example.org. This research has been reviewed and approved by the MUSC Institutional Review Board for research
involving human subjects.
We appreciate your participation in this survey. Please complete the survey once only. Click on the link below to begin. Once you begin the survey, you will need to complete it as the
information will not be saved.
Take the survey >>
If you are
unable to open the survey using the link, please copy and paste the URL into
your browser: https://redcap.musc.edu/surveys/?s=KADL7CLTEC