Support Education Research
Please leave this field empty
Scleroderma Foundation
Homepage | Forward to a Friend | Make a Donation
eletter banner.jpg
eLetter #692 | December 30, 2016  

Time Left to Make a Difference!

Support Research Education
The Scleroderma Foundation thanks you for your unwavering support on behalf of the scleroderma community. Here’s how your generosity has made a difference in 2016:

  • Funded more than $2 million in research grants in the hope of finding the cure.
  • Advocated for increased scleroderma research funding and awareness.
  • Advanced the Continuing Medical Education program for medical professionals.
  • Awarded 56 scholarships to patients to attend National Patient Education Conference.

All made possible because of you!  Please help us make this a season of hope with your tax deductible ear-end gift.


Stanford University Researchers Have Identified Gene Activity to Predict Disease Progression

Laboratory flasksResearchers at the Stanford University School of Medicine and six other institutions have designed a new diagnostic tool scleroderma. By measuring the activity of genes in skin samples, the scientists could predict disease progression as much as a year earlier than clinicians who were using standard methods to evaluate patients.

The study results were published earlier this month in JCI Insight. The lead authors are Shane Lofgren, a research associate at Stanford, and Monique Hinchcliff, M.D., associate professor of medicine at Northwestern University. The senior author is Purvesh Khatri, Ph.D., assistant professor of medicine at Stanford.


New Year's Office Hours for National Office

New Year's EveDue to the New Year's holiday, please take note of revised National Office business hours:
  • Friday, December 30: National Office will close at 3 p.m. eastern
  • Monday, January 2, 2017 - Office closed in observance of New Year's Day
  • Tuesday, January 3, 2017: Regular Office Hours 8:30 a.m. to 5 p.m. eastern

If you need assistance or would like to make a tax-deductible end of year gift, please call during office hours. Otherwise, you can donate online through our website 24/7. Please visit

We hope you have a safe and joyous New Year's!

Forward the eLetter to Friends

Each Friday, the Programs and Services team at the Scleroderma Foundation's National Office strives to bring the scleroderma community resources, articles and news that is educational and beneficial in our weekly eLetter.

Have you considered sharing the eLetter with family or friends? It's easy to sign-up to become a new subscriber to learn more about what's going on in research news and more, or just click the link below to forward this email to them.

Forward this message to a friend >>

Quick Links
Contact Us
Become a Member
About Scleroderma
Calendar of Events
Online Chat
Make a gift
2016 Instagram

Actelion 2016 sponsor
2016 Bayer Logo
2016 Bronze National Sponsor Reata
2016 Gilead Silver Conference Sponsor
United Therapeutics Logo



Sencis Ad - eLetter

Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

Powered by Blackbaud  Unsubscribe | Visit our web site | Contact Us | Donate
300 Rosewood Drive, Suite 105, Danvers, MA 01923 tel: 800-722-HOPE (4673)
© 2019 All rights reserved.