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eLetter #688 | December 2, 2016  

Announcing the Launch of Journal of Scleroderma and Related Disorders

JSRD CoverThe Journal of Scleroderma and Related Disorders (JSRD) is an international, multi-disciplinary, peer-reviewed journal, targeting scientists and clinicians interested in scleroderma and other related autoimmune and fibrotic diseases. JSRD is the official journal of the European Scleroderma Trials and Research group (EUSTAR) and the World Scleroderma Foundation, which supports scleroderma research in all its aspects and is committed to improving the quality of life for scleroderma patients and their families.

This journal is the first and only peer-reviewed publication to focus entirely on scleroderma and related disorders and publishes high quality, original research articles on the epidemiology, natural history, pathophysiology, diagnosis, treatment and outcome of these diseases, as well as reviews and thought-provoking editorials and commentaries. JSRD aims to become the leading reference journal in the field of scleroderma and related disorders worldwide.

Launched in February 2016 to coincide with the 4th Systemic Sclerosis World Congress held in Lisbon, JSRD publishes three issues per year and additional supplements. The standards of the Journal are set high by a distinguished, international editorial board whose expertise span scleroderma, systemic sclerosis, and other related diseases. Professors Marco Matucci-Cerinic and Masataka Kuwana were appointed as the first Editors-in-Chief and have embarked on this compelling endeavour with great enthusiasm. The first volume has seen a number of first class articles, as well as publishing the abstracts from the Lisbon meeting.

The project of JSRD is ambitious and challenging for the whole community of clinicians and researchers who are devoted to the understanding of the disease. However, the Editorial Board are excited to embark on this compelling endeavor, and are confident that JSRD will soon be an important journal and communication platform for the entire community of scleroderma and related conditions.

For more information please contact: Samantha Taylor, Wichtig International Limited, samantha.taylor@wichtig.com

Free Webinar: Manage Chronic Illness Symptoms

You're invited to join Scleroderma Foundation, Foundation for Sarcoidosis Research and Inspire for our upcoming free webinar, "Managing Chronic Illness Symptoms and Living Better Through Mind Body Strength" at 1 p.m. eastern on Thursday, Dec. 8, 2016.

During this one-hour program rooted in mindfulness, Lesley Ann Saketkoo, M.D., M.P.H., will plant practical seeds to help chronically ill patients manage their symptoms and navigate a fulfilling and connected life experience.

Learn More and Register

We look forward to seeing you Dec. 8. Please send any comments or questions to Partner@inspire.com.

Call for Questions for "Scleroderma Voice"

question markEvery issue of our magazine "Scleroderma Voice" includes articles called "On Call" and "What's Up Doc?" These sections provide answers to questions that are commonly asked by patients.

What questions do you have that you would want to see answered? They should be questions that many patients would want to know about.

Email us your question and you may see it appear in the magazine or on our website. Don't receive "Scleroderma Voice"? Become a Foundation member today for just $25!

Video: Vascular Disease - Much More Than Raynaud's

Dr. Shapiro Video

2016 Doctor of the Year, Dr. Lee Shapiro, builds a case for vascular disease as the basis of many other manifestations, including gastrointestinal disease and calcinosis.  He also discusses promotion of angiogenesis as another possible treatment approach.

Watch the entire session >>

Pulmonary Hypertension Awareness Month

November, in addition to being the month of giving thanks, was also Pulmonary Hypertension Awareness month.

Have you ever experienced an act of kindness that stuck with you? Maybe a stranger paid for your Monday morning coffee, a friend helped you move into a new house or a relative helped you buy text books for your first semester at college. This year, the Pulmonary Hypertension Association invites YOU to take the #AHeartCures challenge in honor of Pulmonary Hypertension Awareness month.

To accept this challenge, visit www.aheartcures.org.

 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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