The physical demands of travel are taxing. The U.S. Centers for Disease Control and Prevention offer some guidelines for individuals living with chronic illness to follow as they make travel arrangements, including:
1. Ensure that your chronic illness is well-controlled before traveling
2. Keep a letter with you at all times from your doctor about your condition, medications and other important information
3. Consider wearing a medical alert bracelet or necklace to notify emergency responders of your condition in case you are unable to communicate
Medical and Scientific Advisory Board Members Attend Annual ACR Meeting
The American College of Rheumatology's annual meeting was held last week in Washington, D.C. Members of the Scleroderma Foundation's Medical and Scientific Advisory Board (MSAB) were in attendance and presented work about scleroderma to conference guests.
MSAB member, Dr. Tracy Frech, presented her work on gastrointestinal (GI) involvement in scleroderma and the effects of anti-reflux medication during a poster presentation.
Dr. Yukie Yamaguchi from Yokohama University presented her research on a biomarker for scleroderma during poster sessions.
Video: Hand and Face Exercises
In this video, Janet Poole, Ph.D., provides patients with information
about modalities and exercises to improve movement and function in the
hands, face and mouth. She also provides suggestions about the use of
assitive devices and alternate technologies to accomplish tasks of daily
Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
The Scleroderma Foundation is a qualified national nonprofit operating under 501(c)(3) status. The foundation’s federal tax identification number is 52-1375827. Our primary goal is to raise funds for our three-fold mission of support, education and research. The foundation has 20 active chapters and 160 support groups across the country.