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Scleroderma Foundation
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eLetter #687 | November 25, 2016  

#GIVINGTUESDAY is 4 Days Away!

Please consider a gift to the Scleroderma Foundation on November 29, 2016 in the spirit of #GivingTuesday and help us #FUNDTHECURE!

The Scleroderma Foundation plays a vital role in scleroderma research. Your gift will ensure the growth and continued success of scleroderma research to get us one step closer to finding a cure.

Making your gift is easy! Visit www.scleroderma.org/givingtuesday or call us at 800-722-HOPE (4673).

Giving Tuesday Matching Gift 2016

Holiday Travel with Chronic Illness

The physical demands of travel are taxing. The U.S. Centers for Disease Control and Prevention offer some guidelines for individuals living with chronic illness to follow as they make travel arrangements, including:

1. Ensure that your chronic illness is well-controlled before traveling

2. Keep a letter with you at all times from your doctor about your condition, medications and other important information

3. Consider wearing a medical alert bracelet or necklace to notify emergency responders of your condition in case you are unable to communicate

Read more about travel preparations with recommendations from the CDC

Understanding and Managing CoverUpdated: "Understanding and Managing Scleroderma"

The Scleroderma Foundation's popular booklet "Understanding and Managing Scleroderma," written by Dr. Maureen Mayes, has recently been updated.

Download the new version now or call the National Office at (800) 722-4673 for a copy to be mailed to you.


Medical and Scientific Advisory Board Members Attend Annual ACR Meeting

The American College of Rheumatology's annual meeting was held last week in Washington, D.C. Members of the Scleroderma Foundation's Medical and Scientific Advisory Board (MSAB) were in attendance and presented work about scleroderma to conference guests.

ACR

MSAB member, Dr. Tracy Frech, presented her work on gastrointestinal (GI) involvement in scleroderma and the effects of anti-reflux medication during a poster presentation.

ACR

Dr. Yukie Yamaguchi from Yokohama University presented her research on a biomarker for scleroderma during poster sessions.

Video: Hand and Face Exercises

Video Janet Poole

In this video, Janet Poole, Ph.D., provides patients with information about modalities and exercises to improve movement and function in the hands, face and mouth. She also provides suggestions about the use of assitive devices and alternate technologies to accomplish tasks of daily living.

Watch the entire session >>

 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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