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Scleroderma Foundation
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eLetter #679 | October 7, 2016  

Lung Transplant Outcomes Appear Similar for Both Systemic Sclerosis (SSc) and non-SSc Patients

Screen Shot 2016-10-06 at 4.28.22 PM.pngPatients with systemic sclerosis (SSc) associated pulmonary arterial hypertension (PAH) traditionally do not experience many positive health outcomes. Some may benefit from a lung transplant as the disease progresses; but most medical centers are reluctant to perform this surgery because many patients suffer from issues associated with the esophagus which places them at higher risk of organ rejection.

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October is Raynaud's Awareness Month

Screen Shot 2016-10-06 at 4.31.06 PM.pngOctober is Raynaud's Awareness Month, a time to shed light on a painful medical disorder that afflicts 5-10 percent of the American population. Four out of five of them are women.  Raynaud's Disease (also known as Raynaud's Phenomenon or Syndrome) is an exaggerated sensitivity to cold temperatures that causes numbness or pain as the tiny arteries that supply blood to the extremities narrow (vasospasms). Stress can also cause the reaction.

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Video: Yogic Breathing for Symptom Management in Scleroderma

eletter107.jpgWe are happy to announce that select videos from the 2016 National Conference are now available online.  In this session, Sundar Balasubramanian, Ph.D., covers the basics of Yogic Breathing both in theory and practice. He will also help you understand the scientific reasons behind Yogic Breathing. If you have any questions or would like to learn more, please refer to his website.  This video and more can be found on our YouTube channel.  We will continue to post more videos as them become available.

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Anticipate and Treat Gastrointestinal (GI) Issues in Scleroderma

Screen Shot 2016-10-06 at 4.32.28 PM.pngGut involvement in scleroderma, a result of vasculopathy and fibrosis affecting the Gastrointestinal (GI) tract, is common and can be debilitating. When scleroderma affects the lower gut, patients can have bloating, diarrhea, and constipation, and finally, incontinence of the bowel, a condition with often devastating psychosocial consequences.

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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