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Scleroderma Foundation
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eLetter #678 | September 30, 2016  

The Dangers of Dehydration

dangers-of-dehydration.jpg​Water is the essence of life. Every living thing needs water to survive, right down to every cell in all plants and animals. Our bodies are made up of nearly 75% water and in order to thrive, we must supply all the cells in our bodies with adequate water so these tiny magical building blocks that make up our bodies can carry out all their biological processes.

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Many Clinical Trials' Findings Never Get Published

pills in hand.jpgNew research suggests that nearly half of all clinical trials involving kids go unfinished or unpublished — either because the researchers lose interest in the work or take up more pressing projects, or, in some cases, because the companies that funded the studies don’t want the results to get out.

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Video: Skin Care and Wound Management in Systemic Sclerosis

eletter93016.jpgWe are happy to announce that select videos from the 2016 National Conference are now available online.  In this video, Alexandria Crowe, R.N. helps patients understand what is happening to their skin as Systemic Sclerosis progresses.  She also includes evidence-based therapies to consider.  This video and more can be found on our YouTube channel.  We will continue to post more videos as them become available.

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Progress in Joint Damage Intervention:  Researcher Spotlight

logo_rheumatology_research_foundation.jpgEstablishing effective treatment often begins with determining how serious complications of a disease are initiated. Research funded by the Rheumatology Research Foundation is exploring the cause of debilitating joint loss frequently associated with rheumatoid arthritis. Ellen M. Gravallese, M.D. is investigating the pathways that cause rheumatoid arthritis joint damage and exploring options for damage intervention.

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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