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eLetter #675 | September 9, 2016  

The Food and Drug Administration Bans Sale of Many Antibacterial Soaps, Saying Risks Outweigh Benefits

fdasoap.jpgThe Food and Drug Administration banned the sale of soaps containing certain antibacterial chemicals on Friday, saying industry had failed to prove they were safe to use over the long term or more effective than using ordinary soap and water.

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Are You Prepared for an Emergency?

cdc-logo-1024x751.jpgIt is important that people with disabilities and their family members make plans to protect themselves in the event of disasters. In addition, first responders need to know how to work with people with disabilities to evacuate them safely and quickly. Emergency planners must ensure that shelters are accessible to people with a variety of disabilities.  The Centers for Disease Control and Prevention can help you get ready.

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Orphan Drug Designation Granted to Nintedanib for Treatment of Systemic Sclerosis, including Associated Interstitial Lung Disease (SSc-ILD)

Boehringer IngelheimBoehringer Ingelheim today announced that the European Commission (EC) and U.S. Food and Drug Administration (FDA) have granted Orphan Drug Designation to nintedanib for the treatment of systemic sclerosis (SSc, also known as scleroderma), including the associated interstitial lung disease (SSc-ILD).

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Clinical Trials and Research Opportunities

Persons with Systemic Sclerosis Needed for Research Study

Researchers from the Universities of New Mexico and Michigan and the Medical University of South Carolina are seeing participants for a study to evaluate a self-management program for people with systemic sclerosis.  For more information about the study and eligibility requirements please contact Jennifer Serrano at scleroderma-selfmanagement@umich.edu or 734.232.2119.

STRATUS Clinical Research Study Looking for Patients with Systemic Sclerosis that Affects the Lungs

A clinical research study is looking at an investigational medication
that may slow the development of lung fibrosis (inflammation and scarring) associated with systemic sclerosis (SSc).  To help determine the safety and effectiveness of the investigational medication, they are looking for people who have SSc-associated interstitial lung disease (SSc-ILD) that affects the lungs (SSc-ILD) to take part in the study.  For more information about the study and eligibility requirements please contact Courtney Kinsey at courtney.kinsey@bswhealth.org or 214.818.7899. 

 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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