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Scleroderma Foundation
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eLetter #668 | July 15, 2016  

2016 Program Book and Conference Schedule Now Available Online

2016 Cover.jpgThe 2016 Scleroderma Foundation National Patient Education Conference is only two weeks away!  We're looking forward to this year's Conference in New Orleans, LA, and we hope you are too. This year our Conference will hold 74 workshops, of which 45 are being offered for the first time.

The Conference program book and daily schedules - both for the general and juvenile workshops - are now available to view online. Plan your Conference weekend ahead of time!

View the Conference Program Book here >>

Register online for the Conference >>


 

Why Friends Disappear When Crisis Turns Chronic

Why-Friends-Disappear-When-Crisis-Turns-Chronic.jpgIt’s a common experience: Something goes wrong in a family. A child is diagnosed with a chronic illness or a disability. Maybe he or she gets into serious trouble.  You’d think friends would draw closer at times like those. Many drift away instead.

Click here to read more >>

Help for Rare and Undiagnosed Conditions

NIH_Master_Logo_Vertical_2Color.pngTrying to get a diagnosis for a perplexing medical condition can be a long and frustrating process. For rare diseases, a diagnosis may take years. The National Institutes of Health's Genetic and Rare Diseases (GARD) Information Center features information about thousands of rare diseases as well as resources to help with diagnoses and finding appropriate care.

Click here for more >>

American Thoracic Society's Rare Lung Disease Week Starts on Monday, July 17

ats-logo.gifLung Disease Week at the American Thoracic Society (ATS) represents a society-wide initiative to recognize the many rare lung disorders for which ATS PAR (Public Advisory Roundtable) Partner organizations provide support and guidance to patients and their families. For a series of one-week periods throughout the year, ATS PAR brings patient issues to the front and center of the Society's agenda.

Working with its PAR partner, from July 17 through July 23,  ATS will develop and host links to information specific to Rare Lung Diseases.

Click here for more >>



 
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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