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Scleroderma Foundation
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eLetter #665 | June 24, 2016  

What is Telemedicine?

Telemedicine.jpgTelemedicine is the use of medical information exchanged from one site to another via electronic communications to improve a patient’s clinical health status. Telemedicine includes a growing variety of applications and services using two-way video, email, smart phones, wireless tools and other forms of telecommunications technology.

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The Arthritis Foundation Launches Website for Youth with Rheumatic Diseases

youth.jpgThe Arthritis Foundation has launched a website specifically designed to prepare youth with rheumatic diseases and their families for the transition to healthy adulthood.  This website includes a resource library, a transition toolkit and more.

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In Case You Missed It...

par-logo.jpgAs part of Scleroderma Week at the American Thoracis Society (ATS), and in conjunction with Public Advisory Roundtable (PAR) partner, the Scleroderma Foundation, the ATS presented a live webinar on Thursday, June 9, 2016. The webinar entitled "Insights into Scleroderma Associated Interstitial Lung Disease" was hosted by Kristin Highland, MD, of the Cleveland Clinic.

Click here to watch >>


Haiku Contest Details...Win a Free Youth T-Shirt!

The Kids and Teens Program will be offered again this year as part of the National Patient Education Conference!  It is an exceptional program for children and teen patients, siblings of patients, sons/daughters of scleroderma patients, and other young people who are affected by the disease.

In preparation for the conference, we are excited to launch our first ever Haiku contest!  Haiku is a form of poetry, first made popular in Japan, which has become appreciated around the world. Haiku poets are challenged to convey a vivid message in only 17 syllables.  Here are the details:

Create a scleroderma themed haiku.  You must use exactly 17 syllables.   Syllables must be arranged in three lines of 5-7-5 

Submit your haiku through one of our social media channels using the #unmaskthecure

Contest is open to everyone under the age of 18 and will begin on Monday, June 27.  A big thank you goes out to Diane Weber Design for creating our cool t-shirt design.

Good Luck! 


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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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