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Scleroderma Foundation
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eLetter #664 | June 17, 2016  

2016 National Patient Education Conference Hotel Update

sheraton-new-orleans.jpgHave you booked your hotel room for the 2016 National Patient Education Conference yet?  If not, the discounted room rate is available during the conference as well as three days before and after, subject to availability, and is not guaranteed after July 7, 2016, nor if room block has sold out.  We are close to sell out status and recommend you book your rooms as soon as possible.

You must make your own reservations for the hotel. Please call the Sheraton New Orleans Hotel directly at (888) 627-7033 and mention the Scleroderma Foundation or you may register online directly with the hotel. The group rate is $165 plus tax per night for a single or double room.

Click here for more conference info >>

Creative Minds: Stretching the Limits of Wearable Devices

darren-lpomi.jpgWhether it’s a pedometer dangling from a belt loop or a skin patch to monitor heart rate and hydration levels, wearable and mobile devices have become essential gear for many of today’s fitness minded.  But engineers are envisioning even more impressive things to come for optimizing workouts and bringing greater precision to health care.

Click here for more >>


World Scleroderma Day Virtual Walk

stepping out web sized logoDid you know that the Scleroderma Foundation is hosting a VIRTUAL “Stepping Out to Cure Scleroderma” walk-a-thon?  This is a great opportunity to connect with old friends, meet new ones online and virtually walk in memory or honor of loved one affected by scleroderma.

The National World Scleroderma Day Virtual Walk is connected to “Stepping Out to Cure Scleroderma”, the Foundation’s premier fundraising event. Unfortunately, “Stepping Out to Cure Scleroderma” walks do not occur in every city across America. But it is important to the Foundation that everyone has an opportunity to participate in the walk in some way. It is an easy and fun way to make a difference by raising funds for those living with scleroderma.

Before you begin planning your Virtual Walk, check and see if there is a local walk near you. Click here to see a list of walk events in your state. Many of our 22 chapters are hosting walks in 2016 and even have their own virtual component in the event you cannot attend. We do encourage you to participate locally whenever possible.

Click here for more >>

Video:  How Can I Manage Systemic Sclerosis Myself?

june17eletter.jpgThe Federation of European Scleroderma Associations (FESCA), has released a series of videos that were recorded at the 4th Systemic Sclerosis World Congress earlier this year.  The workshops cover a variety of different topics and features.  This session addresses coping with the everyday challenges of scleroderma and support groups.

Click here to watch >>

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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