The Scleroderma Foundation is honored to partner with the Scleroderma
Society of Canada and the Scleroderma Research Foundation on an
awareness campaign during Scleroderma Awareness Month in June. The
organizations have come together for a second year as a strong voice
with a unified message to advance awareness about scleroderma throughout
North America and globally.
Throughout the month of June, you will see blog posts, Twitter messaging
and Facebook posts on the three organization’s sites. We hope you will
spread these stories on your own networks to advance our cause and
outreach. We also ask that you take the pledge at hardword.org to tell
at least one other person about scleroderma this month, either through
conversation or social media.
Join our fight to spread scleroderma awareness. Learn more about the “Hard Word. Harder Disease” campaign at www.hardword.org today.
American Thoracic Society (ATS) Presents Live Webinar
As part of Scleroderma Week at the ATS, and in conjunction with Public Advisory Roundtable (PAR) partner, the Scleroderma Foundation, the ATS presents a live webinar
on Thursday, June 9, 2016 at 2:00 PM ET. The webinar entitled "Insights
into Scleroderma Associated Interstitial Lung Disease" will be hosted
by Kristin Highland, MD, of the Cleveland Clinic.
Scleroderma Foundation Earns Coveted 4-Star Rating from Charity Navigator
The Scleroderma Foundation recently earned a 4-star rating from Charity Navigator, America's largest independent charity evaluator. The 4-star rating is a result of the Foundation maintaining sound fiscal management practices and a commitment to accountability and transparency in its efforts helping people with scleroderma cope with the disease.
Video: Predicting the Future with Systemic Sclerosis
The Federation of
European Scleroderma Associations(FESCA), has released a
series of videos that were recorded at the 4th Systemic Sclerosis World
Congress earlier this year. The workshops cover a variety of different
topics and features. This session addresses living with systemic sclerosis and what you can expect in the future.
Social Security’s disability program provides medical and financial
support to disabled individuals and their families in a time of need.
The Social Security Act sets out a strict definition of disability. We
pay benefits to people with a severe medical condition that prevents
them from performing substantial work, and expected to last at least one
year or result in death.
Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
The Scleroderma Foundation is a qualified national nonprofit operating under 501(c)(3) status. The foundation’s federal tax identification number is 52-1375827. Our primary goal is to raise funds for our three-fold mission of support, education and research. The foundation has 20 active chapters and 160 support groups across the country.