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eLetter #662 | June 3, 2016  

June is Scleroderma Awareness Month

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The Scleroderma Foundation is honored to partner with the Scleroderma Society of Canada and the Scleroderma Research Foundation on an awareness campaign during Scleroderma Awareness Month in June. The organizations have come together for a second year as a strong voice with a unified message to advance awareness about scleroderma throughout North America and globally.

Throughout the month of June, you will see blog posts, Twitter messaging and Facebook posts on the three organization’s sites. We hope you will spread these stories on your own networks to advance our cause and outreach. We also ask that you take the pledge at hardword.org to tell at least one other person about scleroderma this month, either through conversation or social media.

Join our fight to spread scleroderma awareness. Learn more about the “Hard Word. Harder Disease” campaign at www.hardword.org today.

 

American Thoracic Society (ATS) Presents Live Webinar

par-logo.jpgAs part of Scleroderma Week at the ATS, and in conjunction with Public Advisory Roundtable (PAR) partner, the Scleroderma Foundation, the ATS presents a live webinar on Thursday, June 9, 2016 at 2:00 PM ET. The webinar entitled "Insights into Scleroderma Associated Interstitial Lung Disease" will be hosted by Kristin Highland, MD, of the Cleveland Clinic.

 Click here to register >>

Scleroderma Foundation Earns Coveted 4-Star Rating from Charity Navigator

4StarSquare.jpgThe Scleroderma Foundation recently earned a 4-star rating from Charity Navigator, America's largest independent charity evaluator.  The 4-star rating is a result of the Foundation maintaining sound fiscal management practices and a commitment to accountability and transparency in its efforts helping people with scleroderma cope with the disease. 

 Click here for more >>

Video:  Predicting the Future with Systemic Sclerosis

eletterjune1.jpgThe Federation of European Scleroderma Associations (FESCA), has released a series of videos that were recorded at the 4th Systemic Sclerosis World Congress earlier this year.  The workshops cover a variety of different topics and features.  This session addresses living with systemic sclerosis and what you can expect in the future.

Click here to watch >>

Applying for Social Security Disability Benefits

ssa-disability-benefits.jpgSocial Security’s disability program provides medical and financial support to disabled individuals and their families in a time of need. The Social Security Act sets out a strict definition of disability. We pay benefits to people with a severe medical condition that prevents them from performing substantial work, and expected to last at least one year or result in death.

Click here for more >>

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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