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Scleroderma Foundation
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eLetter #660 | May 20, 2016  

Scleroderma Foundation National Director of Programs and Services Named Chair Elect of the American Thoracic Society (ATS) Public Advisory Roundtable (PAR)

par-logo.jpgThe Scleroderma Foundation is proud to announce that National Director of Programs and Services Kerri Connolly has been named Chair Elect of the American Thoracic Society (ATS) Public Advisory Roundtable (PAR).  ATS-PAR is a core component of ATS.  ATS-PAR bridges the patient’s perspective to the Society and provides the Board of Directors with strategic guidance to keep patients and families as a central focus of all ATS activities and programs.

Click here for more on ATS-PAR >>

Loneliness: The new (old) smoking?

la-sci-sn-loneliness-heart-risk-smoking-201604-002.jpgNew research shows that feeling lonely or socially isolated bumps up a person's average risk for coronary heart disease and stroke -- two of the developed world's most prolific killers -- by 50%.  As a risk factor for heart attack, clogged arteries or stroke, those statistics put loneliness on a par with light smoking, anxiety and occupational stress.

Video: Digital Ulcers and Calcinosis

ulcers.jpgThe Federation of European Scleroderma Associations (FESCA), has released a series of videos that were recorded at the 4th Systemic Sclerosis World Congress earlier this year.  The workshops cover a variety of different topics and features.  This session addresses the pain of digital ulcers and calcinosis.

Click here to watch the entire session >>

SPF You Can Wear!  11 Stylish Ways to Add Sun Protection This Summer

0906-girl-beach-hat.jpgWith the fun of summer comes a ton of sun exposure as we hit the beach, pool or lake. While studies have shown that Vitamin D is good for us in small doses, it's UVA and UVB rays can be damaging over long periods of time.

Click here for more >>


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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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