Advocates on Steps of Congress 2013
Please leave this field empty
Scleroderma Foundation
Homepage | Forward to a Friend | Make a Donation
eletter banner.jpg
eLetter #655 | April 15, 2016  

Drug Enforcement Administration (DEA) Announces 2016 National Prescription Drug Take-Back Day

got_drugs_banner.jpgThe DEA announced that the National Prescription Drug Take-Back day will be held on April 30th.  The National Prescription Drug Take-Back Day aims to provide a safe, convenient, and responsible means of disposing of prescription drugs, while also educating the general public about the potential for abuse of medications.  Many Americans are not aware that medicines that languish in home cabinets are highly susceptible to diversion, misuse, and abuse.

Video: Pins & Needles in Hands and Feet?  Or No Sensation at all?  How to Manage Neuropathy

playbutton2.jpgIn this video Paula Erwin-Toth, MSN, RN, CWOCN, FAAN, explains neuropathy and how to prevent skin breakdown. Learn about the importance of taking extra care of hands & feet by following these expert tips and using the right products, like Welmedix HomeCare PRO, which have been specially designed for fragile skin. Available at CVS nationwide.

Click here to watch >>

National Institute of Biomedical Imaging and Bioengineering (NIBIB) Help Design New Sensor

Wrist Imagescihlt.jpgA U.S.-Chinese team that included researchers from the National Institute of Biomedical Imaging and Bioengineering (NIBIB) and the National Heart, Lung, and Blood Institute, both parts of the National Institutes of Health, conducted a pilot study showing that an ultrathin, skin-conforming sensor—resembling a peel-away tattoo—provides non-invasive, precise, and continuous monitoring of circulation, including blood flow within the smallest vessels.

Click here for more >>

Scleroderma Foundation Launches New World Scleroderma Day Virtual Walk

Walk logo 2016To commemorate World Scleroderma Day on June 29, 2016, the National Office of the Scleroderma Foundation is hosting a VIRTUAL “Stepping Out to Cure Scleroderma” walk-a-thon! This is a great opportunity to connect with old friends, meet new ones online and virtually walk in memory or honor of loved one affected by scleroderma.

The National World Scleroderma Day Virtual Walk is connected to “Stepping Out to Cure Scleroderma”, the Foundation’s premier fundraising event. Unfortunately, “Stepping Out to Cure Scleroderma” walks do not occur in every city across America. But it is important to the Foundation that everyone has an opportunity to participate in the walk in some way. It is an easy and fun way to make a difference by raising funds for those living with scleroderma.

Before you begin planning your Virtual Walk, check and see if there is a local walk near you. Click here to see a list of walk events in your state. Many of our 22 chapters are hosting walks in 2016 and even have their own virtual component in the event you cannot attend. We do encourage you to participate locally whenever possible.

Click here for more info >>

Clinical Trial Update                                             

Corbus Pharmaceuticals Receives U.S. Food and Drug Administration (FDA) Approval for Open-Label Extension to Its Phase 2 Trial of Resunab for Systemic Sclerosis

header-logo.pngCorbus Pharmaceuticals, a clinical stage drug development company targeting rare, chronic, serious inflammatory and fibrotic diseases, announced today that the U.S. Food and Drug Administration (FDA) has granted approval for a 12-month open-label extension study of the ongoing Phase 2 clinical trial of Resunab for the treatment of diffuse cutaneous systemic sclerosis.  

Click here for more >>

 
Quick Links
Advocacy
Contact Us
Become a Member
About Scleroderma
Calendar of Events
Online Chat
Store
Home
facebook_32.png
twitter_32.png
Youtube_32x32.png

Actelion 2016 sponsor
2016 Bayer Logo
2016 Bronze National Sponsor Reata
2016 Gilead Silver Conference Sponsor
Genentech
United Therapeutics Logo
 

 

 

Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

Powered by Blackbaud  Unsubscribe | Visit our web site | Contact Us | Donate
300 Rosewood Drive, Suite 105, Danvers, MA 01923 tel: 800-722-HOPE (4673)
© 2017 All rights reserved.