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Scleroderma Foundation
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eLetter #654 | April 8, 2016  

Scleroderma Foundation Announces New Center Designation at Massachusetts General Hospital

scleroderma foundation eletter logo.jpgDid you know that the Scleroderma Foundation has a new center designation in Boston, MA? The Massachusetts General Hospital Scleroderma Program provides expert multidisciplinary care for scleroderma (systemic sclerosis) and conducts research to enhance our understanding of the disease and develop new treatments.

Video: Scleroderma Skin Care - Learn the Regimen Trusted by Nurses

video654.jpgIn this video Paula Erwin-Toth, MSN, RN, CWOCN, FAAN, explains how a simple daily regimen makes managing skin affected by scleroderma a little easier. Learn about the importance of cleansing and protecting your skin with the right products, like Welmedix HomeCare PRO, which have been specially designed for fragile skin. Available at CVS nationwide.

Click here to watch the entire video >>

How to Treat Seasonal Allergies

allergies.jpgAs much as everyone looks forward to spring, some folks grit their teeth for several weeks or live on a steady dose of allergy pills.  Are you looking for ways to get through spring a little happier and maybe less medicated? 

Click here for more >>

Early Bird Registration Rates Still Available for 2016 National Patient Education Conference

Save the Date, slider imageThe 18th annual National Patient Education Conference offers educational and networking opportunities for people living with scleroderma, their caregivers, family members and friends.  Register now and take advantage of the Early Bird Registration rates.  We also offer a kids program at the conference that is open to younger patients, their siblings or even the child of an adult patient. Join us in New Orleans, Louisiana from Friday, July 29, to Sunday, July 31, 2016!

Click here for more >>

National Study Opportunity                                             

Food Choices and Scleroderma

Many people living with scleroderma perceive that what they eat influences their symptoms related to scleroderma.  This study is inspired by people attending the Scleroderma Foundation Patient Conference who expressed a desire for research such as this to be conducted.

If you are a person with scleroderma and you experience related gastrointestinal symptoms such as bloating, cramping, nausea, vomiting, regurgitation, diarrhea, constipation etc., you may be interested in participating in this research study.

This is a national study run by the New Orleans Scleroderma Patient Care and Research Center (Lesley Ann Saketkoo, MD, MPH, Tulane University Lung Center) using telephone counseling and online questionnaires to assess the impact of various diets that might impact symptoms in scleroderma. 

Click here for more >>

 
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Actelion 2016 sponsor
2016 Bayer Logo
2016 Bronze National Sponsor Reata
2016 Gilead Silver Conference Sponsor
 

 

 

Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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