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eLetter #653 | April 1, 2016  

The American Thoracic Society (ATS) Presents 10th Annual Free Patient/Family Forum

par-logo.jpgThe American Thoracic Society Public Advisory Roundtable (PAR)
is pleased to invite you to our tenth annual FREE patient/family forum
“Meet-the-Experts” on Saturday, May 14 at the San Francisco Marriott in San Francisco, CA.  The Scleroderma Foundation is a member of the ATS Public Advisory Roundtable.

An Interview with Dr. Kristin Highland on Systemic Sclerosis

drk.jpegDr. Highland is fellowship-trained in both pulmonary/critical care and rheumatology. She is a member of the Respiratory Institute of the Cleveland Clinic Foundation located in Ohio.  Dr. Highland’s research interests have focused on interstitial lung disease and pulmonary hypertension with an emphasis on scleroderma.

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Exploring Sources of Emotional Distress among People Living with Scleroderma - A Case Study

hands1.jpgThe main finding of this case study was that sources of emotional distress for people with scleroderma are multifaceted in nature, begin prior to the diagnosis, and continue throughout their lives in an unpredictable manner. 

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Clinical Trial Update                                                                      

Cytori Update on Its U.S. Phase III Scleroderma Trial

Cytori Therapeutics, Inc. announced that its U.S. FDA approved Phase III STAR trial has enrolled and treated its 40th patient (50% of target enrollment). In addition, a pre-specified independent data monitoring committee review of safety data from the initial 20 patients has been conducted and the committee has recommended that the study continue as planned.

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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