you just received the news from your doctor. You have scleroderma.
Now what? Feeling stunned or scared upon your diagnosis is a natural
first response but there are steps you can take to empower yourself and
And speaking of our friends at the Pulmonary Hypertension Association. They will be hosting an
hour long FREE webinar on Wednesday, January 20 on Living Well with Lung
Disease. Join Kristen Holm, PhD, for a discussion on the ways that
lung disease affects patients and families.
The Foundation works diligently to expand our network of support groups. We are excited to announce two new support groups to our growing list. Please welcome Las Vegas, Nevada and Jacksonville, Florida to the family.
Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
The Scleroderma Foundation is a qualified national nonprofit operating under 501(c)(3) status. The foundation’s federal tax identification number is 52-1375827. Our primary goal is to raise funds for our three-fold mission of support, education and research. The foundation has 20 active chapters and 160 support groups across the country.