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Scleroderma Foundation
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eLetter #642 | January 15, 2016  

When the Diagnosis is Scleroderma

Scleroderma285.pngSo you just received the news from your doctor.  You have scleroderma.  Now what?  Feeling stunned or scared upon your diagnosis is a natural first response but there are steps you can take to empower yourself and move forward.

Click here to

Happy 25th Anniversary to the Pulmonary Hypertension Association (PHA) family!

news.pngCongratulations on your 25th anniversary!  On January 12, 1991, at her kitchen table, Pat Paton held a meeting with her sister and fellow pulmonary hypertension patients. 

Click here to read their Kitchen Table Story >>

Living Well with Lung Disease Free Webinar

PHALogo.JPGAnd speaking of our friends at the Pulmonary Hypertension Association.  They will be hosting an hour long FREE webinar on Wednesday, January 20 on Living Well with Lung Disease.  Join Kristen Holm, PhD, for a discussion on the ways that lung disease affects patients and families. 

Click here to register >>
New Support Groups Added

scleroderma foundation eletter logo.jpgThe Foundation works diligently to expand our network of support groups.  We are excited to announce two new support groups to our growing list.  Please welcome Las Vegas, Nevada and Jacksonville, Florida to the family.

Click here to see the entire list >>

Fibrocell Science Develops Therapies for Localized Treatment of Connective Tissue and Joint Diseases

Fibrocell-Science-Inc-logo.gifFibrocell is developing a pipeline of cell and gene therapies for localized treatment of connective tissue and joint diseases using autologous fibroblasts to deliver a targeted gene.

Click here to
Holiday Office Closure

The Foundation will be closed on Monday, January 18th for Martin Luther King, Jr. Day.  Our office will re-open on Tuesday, January 19th at 8:30AM.

"Life's most persistent and urgent question is, 'What are you doing for others?' - Martin Luther King, Jr.

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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