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Scleroderma Foundation
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eLetter #633 | November 20, 2015  

Scleroderma Foundation Representatives Attend American College of Rheumatology Annual Meeting

Members of the Scleroderma Foundation's national office were in San Francisco, Calif., last week for the annual meeting of the American College of Rheumatology (ACR). More than 16,000 rheumatologists, clinical researchers and other professionals from around the world were at the meeting. The Foundation experienced a large number of visitors to its booth. During the event, the Foundation announced its upcoming Continuing Medical Education program for physicians and nurses. The new course with be on Difficult Management Problems in Systemic Sclerosis for physicians and nurses.Hall.jpg

ACR is an important venue for the Foundation to strengthen relationships with physicians, current and potential funding partners, patient/membership organizations and others. An in-depth article on current research results, findings, and advances reported at the meeting, be sure to tune in to our Spring edition of the “Scleroderma Voice”. If you would like to receive this quarterly magazine, we welcome you to become a member of the Foundation.


Video: Medical Emergency Readiness

SS-cassoobhoy-ervisits-video-playback.jpgDr. Murtaza Cassoobhoy provides tips to help you successfully navigate the hospital system from an initial emergency room visit through an inpatient stay.  The "Medical Emergency Readiness" workshop was presented at the 2015 National Patient Education Conference in Nashville.

Click here to see the entire workshop >>




Scleroderma Foundation Announces New Board Members

scleroderma foundation eletter logo.jpgThe Scleroderma Foundation recently elected three new members to serve on the Foundation's National Board of Directors.  The Foundation is excited to welcome Katayun (Kathy) Jaffari, Bill Martin and Bruce Cowan to the board. 

Click here for more information >>

New Study Reveals Promising Treatment for Interstitial Lung Disease 

Pill Bottle with Pills.jpgLung complications of scleroderma are potentially very serious.  One complication is interstitial lung disease, which is characterized by progressive scaring of the lung tissue that eventually hinders a person's ability to breathe.  A new two-year study shows mycophenolate motifil to be as effective cyclophosphamide in treating interstitial lung disease.

Click here to see the full press release >>

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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