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Scleroderma Foundation
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eLetter #622 | Sept. 4, 2015  

Newly Diagnosed? Important Tips and Recommendations

fruitWhen you're newly diagnosed with a chronic illness like scleroderma, many of your lifestyle habits need to adjust and change. One of the most important things is to empower yourself with learning the most about your new condition, such as potential treatments and medications, comorbid conditions and symptoms, exercise, diet and more.

The team at RheumInfo has put together a great article to go over many of the things that you need to think about as you start on this new journey.

Read the full article from RheumInfo now >>

Video: Digestive System (GI) in Scleroderma

Digestive Issues Video 2015 Conference

Gut involvement (also called digestive system or gastrointestinal involvement) is common in scleroderma and can affect up to 95 percent of people. Dr. Dinesh Khanna, of the University of Michigan, presented this lecture from the 2015 Scleroderma Foundation National Patient Education Conference, and addressed different digestive disorders and management, and also discussed the role of nutrition on a healthy GI system.

Watch the entire session video now >>

Multicultural Outreach Initiative

book_stack.pngThe National Institute of Arthritis and Muskuloskeletal and Skin Diseases (NIAMS) has put together a Multicultural Outreach Initiative to provide important health information to diverse communities.

You can find materials and resources about bone health, skin diseases, osteoporosis, scleroderma, chronic pain and more in several different languages, including Chinese, English, Korean, Spanish and Vietnamese.

Access and download these useful resources from NIAMS today >>

Become a Scleroderma Foundation Member
Receive our award-winning quarterly magazine

Fall 2015 Scleroderma Voice CoverWhen you become a Scleroderma Foundation member, you will receive four issues each year of our award-winning magazine, "Scleroderma Voice."

In each issue, we share:

  • Inspiring stories from people battling scleroderma
  • Tips to improve your quality of life
  • News about important scleroderma research and our fight to increase research funding
Membership is only $25 per year for U.S. residents and $35 for those residing in other countries. Members also receive a discount to attend the annual National Patient Education Conference!

Become a member today for only $25 a year >>

National Office will be closed for Labor Day

Please note that our National Office will be closed on Monday, Sept. 7, in honor of the Labor Day holiday. We will reopen for normal business hours on Tuesday, Sept. 8.

We hope you have a safe and wonderful holiday weekend with your family and friends!

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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