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Scleroderma Foundation
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eLetter #621 | August 28, 2015  

Video: An Update on Connective Tissue Disease-Associated PAH

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In this year's Grand Lecture session, Dr. Lorinda Chung, of Stanford University School of Medicine, reviewed risk factors and guidelines for screening for Pulmonary Arterial Hypertension (PAH) in Systemic Sclerosis and other Connective Tissue Diseases. She also discussed tests to diagnose and monitor PAH and currently available PAH treatment options.

Watch the entire session video on YouTube >>

Stay tuned to the weekly eLetter as we share more videos from this year's conference!


Home Remodeling for Disability and Special Needs

homeCreating a home space to accommodate your personal and physical needs if you live with a disability or special needs can be difficult.

Learn more about resources available to help guide you in making changes and renovations in this article from Expertise.com >>

Watch Angela Martinez Perform at the 2015 National Patient Education Conference

angela martinez.jpgCountry singer Angela Martinez performed her new single, "Never Give Up," exclusively for conference attendees. This is the second time Angela has performed at a Scleroderma Foundation's National Conference.

Watch the full performance now >>

10 Ways to Cope with a Child's Chronic Illness

alphabetThere currently are 10 to 20 million children in the United States that live with a chronic illness, which can affect the entire family.

Learn 10 tips from one family about how to cope with the challenges and changes >>

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Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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