Forgot password?
   Please leave this field empty
Support Education Research
Please leave this field empty
 
Scleroderma Foundation
Homepage | Forward to a Friend | Make a Donation
eletter banner.jpg
eLetter #934 | September 10, 2021  
ILD Day 2021 Save the Date

First-Ever ILD Day is September 15

Did you know: those with systemic scleroderma are at increased risk for ILD.

The Scleroderma Foundation is proud to present the first ILD Day on September 15 to drive awareness of interstitial lung disease.

LEARN MORE

Rocky Mountain Education Summit

Rocky Mountain Scleroderma Education Summit

ZOOM: Sat., Sept. 25; 10 a.m. to 1:45 p.m. Mountain Time

Sign up for one of three virtual educational sessions hosted by the Rocky Mountain Chapter on Saturday, September 25.

10:00 a.m. - 11:15 a.m. MDT: Get Moving Again: Accessible Yoga, Breathing, and Improved Gut Health. Rachel Lando and Dr. Laura Pace . Register

11:30 a.m. - 12:15 p.m. MDT: Grin and Bear It - Strategies for Living With a Small Mouth. Dr. Sandy Vojik and Dr. David Leader. Register

12:30 p.m. - 1:45 p.m. MDT: Things Your Doctor Never Told You: Sex, Drugs, and Other Taboo Topics. Comedian Karen Vasquez, Dr. Kelli Gross, Dr. Erica Johnson, Dr. Jessica Farrell, and Dr. JoAnna Harper. Register

Virtual Meeting Woman couch

SYNC Meet-Up

ZOOM: Friday, Sept. 10 at 7:00 p.m. Eastern Time

SYNC (Scleroderma Young Adults Needing Connection) invites you to join their September 10 Zoom meeting. This meeting will be a general discussion among young adults between the ages of 18 and 42, who are looking to connect with other individuals affected by scleroderma. For questions, please email Amy Gietzen, agietzen@scleroderma.org or Natalie Puccio at nataliepuccio18@gmail.com.

REGISTER

Rheumatic Disease Awareness Month Reproductive Date

Rheumatic Disease Awareness Month

September is Rheumatic Disease Awareness Month, created to raise awareness of over 100 rheumatic diseases that affect millions of people each day. The Rheumatology Research Foundation will share educational information and spotlight RheumChampions throughout the month on Facebook, Twitter, and Instagram

As part of Rheumatic Disease Awareness Month, the American College of Rheumatology and its Simple Tasks campaign will host an interactive, patient-focused webinar on reproductive health and rheumatic disease. Attendees can expect discussion and resources from a panel of leading experts in reproductive health and parenting.

Rheum4You: Reproductive Health & Rheumatic Disease WEBINAR: Sept. 14, 2021; 7 p.m. Eastern Time
REGISTER

Advertisement
United Therapeutics PHPal Patient Ad
 
Delaney Duchek BASc SPIN Chat

Delaney Duchek, BASc

BIPOC Virtual Support Group

ZOOM: Sept. 12, 2021; 4 - 5:30 p.m. Eastern Time TOPIC: Exercising at Home

The September BIPOC virtual support group meeting features Delaney Duchek, BASc, an MSc student and research assistant in the Health & Wellness Lab, Faculty of Kinesiology at the University of Calgary in Canada. Delaney began working with people living with scleroderma through SPIN (Scleroderma Patient-centered Intervention Network), and more specifically, through the SPIN-CHAT Program during COVID-19. She taught "Exercising at Home" sessions and is excited to adapt these sessions to bring exercising at home to the Scleroderma Foundation BIPOC Support Group.

REGISTER

 Pulmonary Fibrosis Awareness Month 2021

Pulmonary Fibrosis Awareness Month

Each September, join with those who have been impacted by pulmonary fibrosis worldwide to unite for Pulmonary Fibrosis Awareness Month. This initiative relies heavily on social media participation to spread the word about pulmonary fibrosis all over the world. One of the first steps you can take is to follow and interact with the Pulmonary Fibrosis Foundation on social media, using their handle, @pfforg, and get social with hashtags #PFMonth and #BlueUp4PF.

Facebook | Twitter | Instagram | YouTube

World Lung Day 2021 Partners

Proud Partner with World Lung Day

The Scleroderma Foundation is proud to be a partner in World Lung Day (WLD), September 25, a day for lung health advocacy and action. WLD is an opportunity for us all to unite and promote better lung health globally. The theme this year is "Care for Your Lungs:" say no to tobacco, protect them through vaccination, breathe clean air, and take regular physical exercise.

LEARN MORE

 PEDRA Annual Conference 2021

9th PeDRA Annual Conference

VIRTUAL: October 14-15, 2021

The Pediatric Dermatology Research Alliance (PeDRA) will hold its ninth annual conference virtually October 14-15, 2021. Free registration is available to all patient stakeholders until September 20, after which there will be a $15 fee. This applies to patients and parents as well as organizational staff and leadership. To register for free, follow this link and use the “Community Early Registration” category.

LEARN MORE

KGS2 Kids Get Scleroderma Too logo SF

2018 Conference Youth

Kids Get Scleroderma, Too! Save the Date

VIRTUAL: October 23, 2021

The 2021 Kids Get Scleroderma, Too! (KGS2) conference is a one-day event on October 23, 2021. The KGS2 conference focuses on education related to both the localized and systemic forms of scleroderma. Parents and guardians will have specialized education to help their journey in raising a child with scleroderma.

To receive email updates when registration, scholarship, and programming information are available, please enter your email address here.

 

Ticket to Work - WISE

Ticket to Work: Support on Your Journey to Employment

VIRTUAL: Wed., Sept. 22, 2021, 3-4:30 p.m. Eastern Time

If you receive Social Security disability benefits (SSDI/SSI), you probably have questions about how work will affect your benefits. Join ChooseWork on September 22 at 3 p.m. Eastern Time as they answer some of your questions and tell you how you can get started with Social Security’s Ticket to Work Program! 

CHOOSEWORK

 

Advertisement
Kadmon Ad eLetter 2021
 
 
 
QUICK LINKS
 
Advocacy
Contact Us
Become a Member
About Scleroderma
Calendar of Events
Online Chat
Store
Make a Gift
Home
 
SOCIAL MEDIA
 
Facebook
Twitter
Instagram
YouTube
linkedin-icon
 
SPONSORS
 
National Sponsors

Platinum Corporate Sponsor

Janssen

 

Gold Corporate Sponsor

Boehringer Ingelheim Plain

 

Silver Corporate Sponsor

Horizon Therapeutics logo

 

 

 

Disclaimer: The Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

Powered by Blackbaud  Unsubscribe | Visit our web site | Contact Us | Donate
300 Rosewood Drive, Suite 105, Danvers, MA 01923 tel: 800-722-HOPE (4673)
© 2021 All rights reserved.